[Kimberly]

in reply to: Login Issues? Try Clearing Your Browser History and Restart #1184873

and again…

[Kimberly]

in reply to: stress #1185140

@Liz1967 – Interesting studies!

@scanders – I’ve had 5 flares of hypER over the last 10 years due to stress, and all of them occurred when I was right in the middle of it. (Obviously, my own stress management skills could use some improvement…) It might be helpful to label the stressor as something over which you have no control or some control. Things like meditation, deep breathing, etc. might be more helpful for the former – while adding a concrete action plan might be helpful for the latter.

[Kimberly]

in reply to: NEW – Registration is Open for Patient Events in Baltimore (Oct. 8) and Boston (Oct. 14)! #1185118

Here are the links for registration and additional details:

Baltimore (Oct. :
https://www.eventbrite.com/e/graves-disease-thyroid-eye-disease-free-baltimore-patient-education-seminar-tickets-37960460760

Boston (Oct. 14):
https://www.eventbrite.com/e/graves-disease-thyroid-eye-disease-free-boston-ma-patient-seminar-tickets-37933260403

[Kimberly]

in reply to: Trying to find a new endo in Aurora, illiois #1185135

Hello – You might check out the “Looking for a Doctor?” thread in the announcements section of the forum, which has a few links where you can search by zip code.

Members here can also contact you via PM without having to use email.

Instructions for anyone who hasn’t used this option:

“You can send a private message to another user by clicking the PM option in the menu in the top right-hand corner of the screen or by clicking the PM option when you are looking at one of the person’s posts (located to the left of the post, below the screen name). When you send the private message, a notification will be sent to the person at the e-mail address they used to sign up for the forum. You must be logged in to send or to view private messages.”

[Kimberly]

in reply to: NEW – Registration is Open for Patient Events in Baltimore (Oct. 8) and Boston (Oct. 14)! #1185117

Hi all – Registration isn’t yet final for Boston & Baltimore, but we are have a few more details available. Both events will be free, except that a boxed lunch will be available for purchase separately at the Baltimore meeting. (Or feel free to bring your own!)

BALTIMORE (Sunday, Oct : 10:00 a.m. – 2:00 p.m., with registration opening at 9:30 a.m.; boxed lunches will be available for purchase separately from ThyCa (details to come). Location is the BWI Airport Doubletree Hotel.

BOSTON (Saturday, Oct. 14): 8:00 a.m. – 12:00 noon, with registration opening at 7:30 a.m.; coffee and light refreshments will be provided. Location is Massachusetts Eye & Ear.

More info to come next week!

[Kimberly]

in reply to: After a long absence, back again! #1185110

Hi Barbra – So glad to hear that the surgery is behind you and that you got good news from the pathology report. Definitely keep us updated on how you are doing!

[Kimberly]

in reply to: Blast from the past #1185084

Hi Sue – Wow, interesting that you felt such a difference from giving up gluten! Some people do have Celiac disease (another member of the autoimmune family), while others don’t have full-blown Celiac, but do have a gluten sensitivity. (A small study from a couple of years ago actually indicated that gluten sensitivity IS a real phenomenon in some individuals).

Did you use the “Subscribe” button at the bottom right-hand corner of the message thread? The forum won’t automatically send you e-mail updates for all of your threads, but you should be able to request this manually with the “Subscribe” button. If that isn’t working, definitely let me know!

[Kimberly]

in reply to: Post Orbital decompression surgery – 1st some background info #1185115

Hello and thanks for sharing your story!

We do recommend that patients start with the ASOPRS listing if they are looking for a new doc, but it’s certainly fair to ask how many thyroid eye disease patients they see – and to get a second opinion if you have any concerns. Sorry to hear that you had a bad initial experience. Most docs are pretty strict with doing the surgeries in a specific order: decompression, strabismus (if needed), and then eyelid surgery.

[Kimberly]

in reply to: Are You Interested in a Support Group Meeting in Austin, TX? #1184985

Hello and welcome – We actually only had one person show up. She was a Hashi’s patient who had a LOT on her plate at that time, but said that she might be interested in getting a local group going at some point. She was OK with me sharing her contact info, so if you want to email info@gdatf.org, I can put you in touch.

[Kimberly]

in reply to: GED/Eyelid Surgery #1185089

Hello and welcome – I do have lid retraction (originally diagnosed in 2017), but not severe enough to require surgery.

Hopefully, others who have had this surgery done will chime in with their experiences.

Usually, doctors like to see that your eyes have stabilized (no changes for 6 months or so) before doing surgery. Some patients will see an improvement in eye issues as levels stabilize.

Also, hopefully, you have an ophthalmologist who is very familiar with Graves’ disease and who can give you an assessment of whether you might need orbital decompression (which if you do, that surgery is done first).

[Kimberly]

in reply to: After a long absence, back again! #1185095

Glad to see you back, but sorry for the circumstances! Hope that all goes well with the surgery…please keep us posted!

[Kimberly]

in reply to: Blast from the past #1185082

Welcome back! Maybe you could talk to your doctor about testing TSH/T3/T4 before you start a course of steroids and then after you’ve been on them for a few weeks. It would definitely be interesting to see how the results turn out!

If it turns out there isn’t a connection, I’d hate to see you lower your dose on your own!

[Kimberly]

in reply to: Login Issues? Try Clearing Your Browser History and Restart #1184872

…aaaaaaand again…

[Kimberly]

in reply to: Thyroidectomy after 7 years of resistance #1185067

@AZGravesGuy – Good to see you checking in. Interesting comments on diet. I really like the idea of being vegan, but love my dairy…and crave an occasional hamburger. And oh, the carbs! If someone could figure out how to make broccoli look, taste, and smell like bread, they would make a fortune!

[Kimberly]

in reply to: Thyroidectomy after 7 years of resistance #1185068

Welcome back – and thanks for sharing your story!

If you remember the email that you used to set up your original account, you can contact the GDATF using the form below, and we can try to look up your screen name & get your password reset.

http://gdatf.org/about/contact/

[Author]

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