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in reply to: New and confused #1184941
Hi Pharmon,
how are you doing now??? As I said in my original post it was the best thing I could have done for myself.
Shirley
in reply to: Amazing Xiidra #1184894Liz, thank you for mentioning this. Dry eyes, and the inability to have them close while sleeping, is a big issue for me. Will ask for an RX for Xiidra.
Sorry Dr. Douglas is leaving you. But he was there when you really needed him. That is a big plus!in reply to: New and confused #1184939I had a thyroidectomy, and it was the BEST thing I have ever done. No regrets, feel fine. Never looked back. I had a personal preference on no RAI, not ever. I feel the same today.
It’s been a long time, but I logged quite a bit about it at the time.
in reply to: Has anyone tried Xiidra, new dry eye drop? #1184877Have not tried, but very interested in the responses. I have a major issue with my dry eyes. Always burning and uncomfortable. Restasis was not ok for me in any way. I just stopped using it. Been buying over the counter.
Shirleyin reply to: Voice post thyroidectomy #1184847How are you doing now? I had a similar experience. As I recall, the person who noticed it the most, was myself! I think that I forgot about it sometime in the third week. I suspect it was pretty much of a non-issue before then. Things swell a bit when they are messed with! Just think of bumping yourself and getting a bruise! I sing in a chorus, so that definitely strained my voice and was uncomfortable, so took a couple months off for going back.
I waited a couple weeks to go back to work, I think it was about that long. I think I tried to go back too soon, when I gave it a go the first week. I TOTALLY did not feel 100% for at least a month, like back to total baseline. Anesthesia really does knock the socks of your endurance a bit. It is really nice to have someone cook a meal, bend over to put stuff away, clean up the kitchen and do the laundry!
It sounds like you are doing well. If you have the opportunity, take advantage of as much time off as you can that works for your. Or work partial days if your job allows it. I remember being very TIRED.
Do write again, and pretty soon, you will see a post like yours, and be able to reassure them with your recent experience!!!
Shirleyin reply to: Showing Signs of TED — Very Scared #1184852Hi, I agree with Kimberly and Liz. Very important to watch and note symptoms, critical to go to a physician who understands TED. An oculoplastic facial surgeon is the best choice.
This is a good question.
Same as Liz. But once I found it I was hooked. People were SO helpful to me with TED, and then I realized I could be be helpful to others, not only with TED, but with Graves’.
There is always someone new on the site, with the same discouragement, depression, anxiety, and fear that I had with both TED and Graves’. It helps to talk to someone who has been down in the depths of all of it, and read that this person is now pretty much “back in the normal population,”and all aspects of it.
It also is very helpful to chat with someone who is trying to plan a familyYou feel so alone with this. Unlike a pregnancy, or even a surgical procedure that is more well known, there are a lot of people who really do understand, have been there, and offer helpful advice and support. But there are fewer in the Graves’ TED population, and most of us did not have A CLUE about it, and did not know anyone had “been there, done that.”
That’s about it. All of this (except being pregnant!) is the same for men. If anything, it is even harder for them, since Graves’/TED is so much more rare for them. I like to think that AZ Graves guy got a lot of support from us, and like many others, he has been a valuable asset to the discussion.
Many of us old timers pop on now and then to see what is going on. I think it is reassuring, too, to read posts from the very beginning, when we are truly lost, convinced that life as we knew it is gone forever..then watch the progression to to a place where things are so much better.
To Sue and….
…but I did not have as many kids as you did when all that was going on! As I recall, you were in school or working, too…plus munchkins, plus Graves.There are a few of us “old timers” who wrote so much several years ago, I sure would like for all of us to have met…or to meet at a conference! Right now I have forgotten the name of our Arizona Graves guy! Remember him??
Raining in Seattle tonight..what a surprise! Good night to listen to the rain as i go to bed. Just love that. I take my Synthroid at nighttime. Seem to be surviving that.
in reply to: On ATD two years-plus? #1183789To Flora!
Oh no! Never say good bye! You have so much experience to contribute to others,and to the folks who have had no need to “find” this wonderful website and thread yet!
ShirleyI should have been more clear about WHEN I had my thyroidectomy! It was 1959, almost 60 years ago! At a time when CT scans and MRI’s did not exist!
In the recent past, hospitalization times have decreased drastically. Much of it is a good thing. I was ready to go home, get out of there, on post op day #1. But that was unheard of at that time. I also had an 18 month old, which I did not mention. And my husband and I were both in med school. I later switched to nursing.
You have had some great responses, and I echo them. If your concern is still about inflammatory issues,t hat are resolved by diet, I suggest you have a couple labs (ask you doc) that represent inflammation. Nothing wrong with nutrition health people, and there are all kinds. But most likely not MD’s.
Seems like you have had so many good comments, that I am moving forward to a couple things I learned having my thyroidectomy.1. Really nice to have help for at least a week, preferably two. It is not that you can’d “do” most things for yourself, but the extra stuff, that we all have to do, is hard, cause there is a surprising amount of fatigue after a general anesthetic. The things that made all the difference in the world to me:
other people doing”-laundry-anything about it, including putting away clothes and linens, making beds
-grocery shopping, getting anything that sounds good to you, followed by them
thinking of meals, then preparing them
-you will feel good enough to go for short walks outside if your weather permits it.
-I had very little pain, mostly a sore neck, and sore shoulder muscles. That is partly from he position on the operating table, not moving. Our bodies really like to move!
-I covered my neck really well, took showers, made a world of wonderful to me.
I just used saran wrap, and taped it around the area. The best tape int he world that never hurts AT ALL is called Mepitac, and you can order it online. It is so wonderful that I can tape my eyes closed with it, over lids and lashes, and it removes easily in the morning.
-child care, help with them, for sure. Someone can bring them to you to read a story if it does not bother your voice..but it might for a week or so, you may feel little strained and hoarse.
-i used cold packs, but not much (I am always cold!) If you use them, and have a bottom freezer, have other people bend over, get them bring them to you.
-got sick of the bed really fast,and came to kitchen or living room where action was and I could see people. But nice to hid now and then, too. AS I recall, I was in the hospital three days, it might be shorter now. But you are better off at home, anyway.Agree with Liz. I had the very same experience. As Kimberly and Liz both said, you must wait until TED has subsided and your eyes are not changing anymore. Otherwise the surgery will have to be repeated. I found the punctal plugs helpful in one eye, not the other, IT is fine to try, not risky, and does not shut any doors.
In my experience, I always get a written RX for Synthroid, and request the end write “Synthroid only.” It worked pretty well for me in the same circumstance you had. Unrelated to your circumstance right now, I always look at, and read the bottle before I take it from Pharmacy, including looking at the pills. This is always an issue, or can be.
in reply to: Carb Intolerance #1180954Harpy! How NICE to see you name again! Been a long time! You have a lot to contribute. I still lurk around the site. It was a lifesaver to me several years ago.
Shirley
Re carbs. I love them Seem like I am more sluggish after eating carbs, especially in the morning.Sorry I did not know this earlier. I had two trips planned to this area, and I am near Pasadena now for a few days. If I had known the date earlier, I would have attended. I know it is difficult to arrange these events, but with one exception, the announcement is too late for me to change plans. If it were 4-7 months ahead of time, I could plan, get tickets, arrange my life, etc.
So..sorry to miss this
Shirley -
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