[Suze]

in reply to: Lid Retraction Surgery #1185181

Once, again…thank you Liz. You are so helpful!

[Suze]

in reply to: Lid Retraction Surgery #1185179

Liz,

I have a follow up question for you. When I asked my doctor whether to expect numbness from the lid retraction surgery, he said everyone’s lids go numb because nerves get cut. I tried to clarify whether this was a temporary or permanent condition and am not clear on the response. I may not have another chance to clarify this before making my final decision. I realize it likely differs for different people, but I want to understand whether the expectation is that it is (hopefully) temporary or whether this is a permanent side effect of the surgery. I realize your surgery was more involved than mine, but if possible, please provide some perspective on your experience.

Thank you

Susan

[Suze]

in reply to: Lid Retraction Surgery #1185178

Neskirimli,

I just saw this post. Thank you for the response. It is much appreciated as I am still evaluating the situation but under pressure to make a decision.

Suze

[Suze]

in reply to: Lid Retraction Surgery #1185174

Wow. That helps a lot. Let me take in what you said. I may be back to clarify something. I also welcome comments from others. Thank you!

[Suze]

in reply to: Voice post thyroidectomy #1184845

You folks are extraordinary. This is now like the third time that this site has bailed me out from panicking about one thing or another related to this surgery. Thank you for being part of this community and helping out people like me.

[Suze]

in reply to: Request immediate response re holistic/dietary treatment #1184821

Liz,

As my eye doctor reminded me, the thyroidectomy may not have a direct impact on TED bc it is not a cause and effect. He did say that a more stable thyroid tends to be better for TED. As I was informed, it is just a waiting game for TED to burn out. In any event, I may be back for more advice on the TED side. One thing at a time and my thyroidectomy is tomorrow.

Thanks to all the good people on here for all your great advice. It has helped me get to this point.

Suze

[Suze]

in reply to: Request immediate response re holistic/dietary treatment #1184820

Ladies,

Apology for the delay, and I hope you receive this. You sound like a lovely bunch of women. Also, and fyi, I think Arizona Graves guy responded to my previous post.

As Wednesday is fast approaching, I am happy to hear that your surgeries were quite manageable. I have been expecting a more invasive or painful experience than you describe so this is good to hear. Sounds like it may not be that bad. At this point, I’m really more focused on the after effects, but rather than share my concerns, I’ll be back if they actually surface.

I’m curious to know…if you had your thyroids removed years ago (including as far back as 1959!) what keeps you logging in to this site, so many years later? That’s impressive.

Thank you.

Suze

[Suze]

in reply to: Request immediate response re holistic/dietary treatment #1184814

Kimberly and SNelson,

Thanks for the comments and advice. Kimberly, I really like that website and the link you supplied. I didn’t see anything on Graves or Hyperthyroidism but saw some other things of interest. Maybe I was looking in the wrong place, but I am kind of glad because I am moving ahead with the surgery and don’t want anything to make me question that choice at this point. It just seems like something I need to do for my health as much as would prefer to avoid it.

SNelson, thanks for the great tips. It is helpful to move on from thinking about the surgery to thinking post surgery. The advice was much appreciated.

Again to all who have been supplying great information and support, thank you. My surgery is one week from today (the 26th).

Suze

[Suze]

in reply to: Request immediate response re holistic/dietary treatment #1184810

Liz/Sue,

You cannot imagine how much these responses are appreciated. Where I have been netting out is that it would take too long to even see if I would get a response, and I doubt that my goiter would really go away. However, it has been gnawing at me that it is something that I might have tried, and I didn’t even know how to evaluate it. Hearing your stories, that you actually tried these things, makes me feel much more confident in the need to go through with the surgery. I will sleep so much better between now and next Wednesday. Thank your for sharing your knowledge, stories, and experience. Really.

Suze

[Suze]

in reply to: Request immediate response re holistic/dietary treatment #1184807

Thank you for the link. I have to say, I just spoke with a doctor that specializes in nutritional counseling. He was VERY convincing. He talked to the underlying cause of the disease vs. removing the symptom, something which traditional doctors have been unable to do. This doctor is not a quack because he was personally recommended by someone I trust. He thought that there was a very high chance of treatment success and said that he has had a lot of success with his thyroid patients (the second such doctor to tell me this and the other one is a relative). I have separately been reading about toxins in the environment that have an impact on health, and thyroid disruption is always on the list. This doctor spoke to reducing toxins and food allergens that cause inflammation. I guess the prevailing issue is that this has never really been studied by traditional medicine, no clinicals have been done. I realize it would take a lot of time and money to see if he is right, and this is what I am thinking through right now. This is not an easy decision as both sides seem very opinionated.

[Suze]

in reply to: Request immediate response re holistic/dietary treatment #1184804

Liz,

You are once again coming to my rescue. This is extremely helpful. I am scheduled to speak to a nutrition dr. either tomorrow or Monday, and, of course, he is likely to give me the other side of it. I am soooo glad to have this perspective. I’ll check back and let you know what happens. I did not even know where to go for information on this. A big thank you.

Suze

[Suze]

in reply to: Whether to have a thyroidectomy #1184725

Sue,

This response could not have come at a better time. Meeting with the surgeon in 2 days. Wondering if I am making the right decision. I just spoke to people who had some thoughts that raised concerns. So happy to receive this. Thank you.

Suze

[Suze]

in reply to: Whether to have a thyroidectomy #1184724

Sue,

This response could not have come at a better time. Meeting with the surgeon in 2 days. Wondering if I am making the right decision. I just spoke to people who had some thoughts that raised concerns. So happy to receive this. Thank you.

Suze

[Suze]

in reply to: Whether to have a thyroidectomy #1184722

Liz,

I meant to thank you for this. It was very helpful.

Suze

[Suze]

in reply to: Whether to have a thyroidectomy #1184721

MK – if you get this, how did your son’s surgery go?

Suze

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