[Stephanie]

in reply to: I need help in Canada #1173266

Hi Naisly,

I am from BC. I have tried searching for support groups in the lower mainland but was unable to find any. Im not on here very regularly but will try to PM you my email address.

[Stephanie]

in reply to: Graves eye disease sodium selenite #1061163

Jules, Thanks for the article! I am going to try eating Selenium rich foods.

Here’s a list of foods containing Slenium that I’ve found.
10 Selenium Food Sources

1. Brazil Nuts
2. Sunflower Seeds
3. Fish (tuna, halibut, sardines, flounder, salmon)
4. Shellfish (oysters, mussels, shrimp, clams, scallops)
5. Meat (Beef, liver, lamb, pork)
6. Poultry (chicken, turkey)
7. Eggs
8. Mushrooms (button, crimini, shiitake)
9. Grains (wheat germ, barley, brown rice, oats)
10. Onions

[Stephanie]

in reply to: TED, OD surgery: burnout phase? #1061308

Bobbi, thank you for your response. That gives me hope. Blakekr, I absolutely understand how you feel. This nightmare started when I was 26. I just want it to go away! And yes, getting enough sleep/rest is a big thing.

[Stephanie]

in reply to: TED, OD surgery: burnout phase? #1061305

I have had TED for 2 years now. I have a lot of swelling on my upper and lower lids, my right eye is more protruded than the left, and I notice my cheeks look more puffy as well. My opthamologist says the cheek swelling is actually fat pad formation, similar to under my eyes. I constantly look like I have bags under my eyes.

My opthamologist had me wait a year and a half before I had lower lid blepharoplasty, this past April. I thought the hot phase was over, as the swelling had stayed the same since last Sept. However, I guess it wasn’t over, or maybe the surgery actually restarted the hot phase. My under eyes are still puffy and very noticeable to me. Just a small difference than from before the surgery. Maybe its due to my seasonal allergies?? (i hope). I have another appointment in Aug to see my opthamologist again.

I have heard of cases where TED gets better on its own, where as others go on for ever. TED has been the most difficult part to Graves Disease. I wish all the best to you.

[Stephanie]

in reply to: TED symptom relief? Hot phase #1061382

Hello everyone. I have been diagnosed with Grave’s Disease for almost 2 years now. I think the worst part to this disease is definately the eyes. Mine are very puffy, I constantly have bags under my eyes and my right eye is protruding more than the left. To my request, my opthamologist put me on 50mg Prednisone with some relief. However, it caused palpitations and my heart to race. Then he tried 1g solumedrol IV. That cause water retention to my face. After waiting a whole year, I finally had lower lid blepharoplasty, this April. But the puffiness is still there. I don’t notice any difference. This has been very frustrating and taken a toll on my self-esteem (i’m 28). I find what has worked for me with discomfort is heat/cold compress, cutting down on Sodium, and getting enough sleep. I hope a cure to this terrible disease will be found soon. In the mean time, stay strong and know you are not alone in this battle.

[Author]

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