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It’s me again. I know that a long time ago, these was a long time period of new mothers and expectant mothers and hoping-to-be mothers posting (similar to the trend now about total thyroidectomies). They were all informative and encouraging. Unfortunately I have no idea how to search the old posts, but do know that it is possible. Perhaps Kimberly, or someone else with a lot more internet skill than I can help you. I think it would be well worth the considerable effort.
Take care,
Nancy
Dear Cormiers,
I have just read all the posts to your concerns, and you have gotten some great support. Shirley’s response is nothing short of AMAZING. Please keep us posted on how you are doing.
Take care, and hang in there,
Nancy
Hi Caro,
I was perusing the posts. You have gotten some consistently good responses. Remember that WAND (We Are Not Doctors), but WASP (We Are Sensible Patients). All of the responses seem to be from people that have good experience with ATD’s. Listen to your body, Dialogue with your doctor, and get a second opinion if necessary.
Take care,
Nancy
in reply to: Pain being hypo after TT. Might go on Armour. #1181489I am sorry to see that you are having so many symptoms, but VERY IMPRESSED with the fact that you typed your entire post on a smartphone!. If I am reading things right, you are only slightly more than three months post-op. Are you seeing a thyroid SPECIALIST? Are you having FREE T3 and FREE T4 levels done? Those indicate the amount of the hormones that are free and available to you. At this point, Armour sounds sort of risky. It can have severe heart and bone ramifications. It is tough to “wait and see”. It takes a total of six weeks for changes to settle in to your body (that is 6 or 7 half lives of the T4)–it lasts a long time.
Keep us posted/
Take care,
Nancy
in reply to: Urge to tear my muscles out. Help. #1181461Hello Andrew,
Welcome aboard. What does your thyroid specialist say about your unusual muscle symptoms? I can remember pains when I was fairly early diagnosed. Now the only thing is some strange cramps in my shins at night. I hadn’t even thought about them being related to my Graves’, but now I will be asking.
I will try sending your remark to one of our Advisors, but I am sure they will say “not enough information”. What treatment have you had, TSH levels, etc.
Take care,
Nancy
PS You are NOT crazy!
in reply to: What’s with Endos anyway? #1181072Hi Barbra
It looks like you need to get a second opinion. You need to ask when you call (unless you have already looked up the information at http://www.thyroid.org or http://www.AACE.com, if the endocrinologist specializes in THYROID. Those docs can usually tell you how many Graves’ patients they see a week! You live in an area that has many good thyroidologists.
Take care,
Nancy
in reply to: Weight gain after RAI? #1181003Dear Laurie,
Another thing to keep in mind is that very few people who are doing just fine (in this case, had no weight problems after treatment) hop on the Internet to let the world know about it. It is almost always the very frustrated or frightened ones who are looking for “answers” – unfortunately in all the wrong places. Kimberly gave you a couple of good suggestions. Good luck.
Take care,
Nancy
I had symptoms for about a month or 6 weeks, and made an appointment with a cardiologist. He checked me quite thoroughly, wanted me to wear a halter monitor for 24 hours, come back and have a thyroid test run. I had no intention of wearing that ugly thing, so I went to another cardiologist who took about 7 months doing cardiac tests before deciding to send me to an endo–who diagnosed me that day! So, I would have been diagnosed on the first visit if I hadn’t been so vain, and/or if I had spoken up and said I didn’t want to wear the monitor. I was working and didn’t want to cancel a whole day of clients.
Take care,
Nancy
in reply to: The impact of GDATF conference #1180426Dear Barbara,
Congratulations on the first step on the next part of your journey! Keep us posted.
Also, many thanks for the kind remarks about the conferences. We work really hard to have them be just as professional and up-to-date as you describe, and they are truly life=changing events for many people.
There is a one-day conference in Baltimore coming up in late October, and another the following week in Chicago. PLEASE TAKE ADVANTGE OF THEM!
Take care,
Nancy
in reply to: Is Graves as a response instead of a disease? #1180918This is an interesting approach. You are correct in that people without the gene will not develop Graves´, but they develop heart disease, ulcers and a host of other maladies.
It is so trite to say we MUST take care of yourselves. But we MUST! And we must each one find out what works for us, and then actually do it.
Take care,
Nancy
in reply to: Just off Methimazole & High Antibodies #1180965Dear Katy,
Welcome! You will find many warm hearts here, and many who have been through your experiences. Thankfully, there are two other treatments available to you. However, remember that NOT TREATING is NOT AN OPTION.
Take care,
Nancy
in reply to: Recently Diagnosed with TED #1180959There may be some new “pretreatments”, but
Take care,Nancy
in reply to: Is this common for TED? #1180866Hi Amanda,
in a brief word, yes, TED can waiver in and out like yours is doing. I agree that it is great that you have a team of people looking at (and after) you. Think of all the teaching you are doing. Write down your questions before you go in, so they can be addressed. I have a different position on prisms. If there is a new prescription that says “Doctor’s change”, I have never known an optical shop (Lenscrafters, etc.) that did not honor that. You would do well to check before you begin that process.
Gabe is right. As long as those antibodies are “in there” thyroid or none, they are still active and can wreak havoc.
Take care,
Nancy
in reply to: Another Husband #1180776Dear Rick,
Your post nearly brought tears–I was that woman at one time–not for terribly long, but I was there. It was horrible! We have heard from so many husbands over the years, and their letters/posts are so similar to yours. Some of what you describe is likely Graves’, but some of it is likely not Graves’. Even though I am a therapist, I cannot separate it into two separate piles. Much of it is mixed together. Like Sue said, consider counseling for yourself, at least. You need the support and guidance to make it through this.
You don’t say where you live, but is your wife getting really excellent care? Does she need a second (or third) opinion from a true specialist? We can help you find someone. Also, there is a bulletin (go to the home page) titled “An Open letter to Husband’s of Graves’ patients”. It is EXCELLENT. It has been translated in to several foreign languages. It is timeless.
Please stay in touch with us. We can listen, and we are safe.
Take care,
Nancy
Dear Sharon,
I have been on Prednisone more times that I care to count, and more doses than I can count. It IS hard to get off, and you are not there yet. Have you been able to talk to your doctor about all the anxiety? Prednisone can certainly wind us up in that realm, so can just having Graves’ and/or eye disease. Oh, I forgot to mention “life”, too. There may be other approaches that the doctor can take, but only if you talk to them. Give information, such as it is a ___ on a scale of 1-10, and it happens most in _____(whatever part of the day). When is it better, when is it worse? Does it have any relationship to your other medications?
Take care,
Nancy
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