[Momof5]

in reply to: Auto immune trigger – questions #1178028

I was just using gluten as an example because I read a lot of people go gluten free and swear it helped them.

[Momof5]

in reply to: Auto immune trigger – questions #1178027

I did have mine checked and it was smack dab in the middle of the normal range.

[Momof5]

in reply to: Auto immune trigger – questions #1178024

Emmtee. That makes sense for things like stress, but what if it is a food thing? Like gluten, for example.

[Momof5]

in reply to: Auto immune trigger – questions #1178023

Thanks, Christina!

I’m kind of a “got to know what I am dealing with and figure out how to fight it” type of girl. I have been so freaked out by it all and just today, I feel like it’s time to fight this stupid thing with all I’ve got. I don’t think mine is stress, because I have had waaaayyy more stress in my life. So, I’m going to look at other things in my life over the past few months and see if I can find a trigger

My logical brain says if you eliminate the trigger, you should, in theory, be able to reduce the antibodies. I just don’t know if this is true, so I asked.

[Momof5]

in reply to: “stable” for surgery….what does that mean? #1177997

Thanks, Alexis.

[Momof5]

in reply to: Questions about RAI and TED #1177820

Susan, that’s wonderful about your eyes!!!

I have an ophthalmologist appt on the 19th. My left eye is the one that I’m concerned (or maybe just mental) about. It’s slightly swollen (not that you can really see it, but I can feel it). Both eyes are white. But, my left sometimes feels like there is an eyelash stuck on the corner of it. If I pull my eyelid up so it doesn’t crease, that feeling goes away. But, I could be hyper paranoid about it. I don’t know. I’m hoping the ophthalmologist doesn’t say it’s just allergies (which seems to be a common theme on the board).

My husband wants me to stay on the meds for at least a year to give myself a chance, but gosh, I don’t wanna feel like this and ride a rollercoaster for a year!

[Momof5]

in reply to: “stable” for surgery….what does that mean? #1177995

Thanks, Kimberley. I am making a surgical consult on Monday, but of course, I need answers now.

[Momof5]

in reply to: Questions about RAI and TED #1177818

Karen, it’s nice to know others feel that way too. I’m just too scared of my eyes popping out of my head from popping a pill. That makes me sound like a lunatic, but so be it.

My neighbor just had to have half her thryroid removed because of a nodule, and she loved her surgeono, her scar is already looking fabulous 2 months post surgery, and she loved the guy. I’m taking that as a really good sign.

Now, to just get stabilized. I’m so anxious and i feel like I’m going crazy. I feel worse since I’ve been on the meds since before I knew.

[Momof5]

in reply to: Questions about RAI and TED #1177816

I honestly feel more calm with surgery. My endo didn’t like that thought, and my husband thinks RAI is easier, although he would support me in my decision.

I keep waffling back and forth. My endo said to wait until we get me more stable, and I’m trying to do that, but it’s hard because I think it’s looming in my future.

[Momof5]

in reply to: Kimberly, Ski, Bobbi – can you share your stories for the newbies? #1177935

In truth, it ALL scares me, not just your story. I’m overwhelmed and anxious and feel out of control like I never have before.

[Momof5]

in reply to: Kimberly, Ski, Bobbi – can you share your stories for the newbies? #1177933

Wow. That is kinda scary (at least to a newbie) that your are still dealing with eye issues.

I think I am destined for eye problems And I don’t know how to get a grip on that.

[Momof5]

in reply to: Questions about RAI and TED #1177813

I am more fixated on the eyes going bad in general, not just being a smoker (not and never have been). Just trying to determine if RAI is the right choice.

[Momof5]

in reply to: Kimberly, Ski, Bobbi – can you share your stories for the newbies? #1177929

So, you are still dealing with TED issues, even now? Or just the after effects?

[Momof5]

in reply to: Kimberly, Ski, Bobbi – can you share your stories for the newbies? #1177927

Thanks, Kimberely. You are right. Getting the diagnosis was a shock to say the least. N

Did you ever have TED problems?

[Momof5]

in reply to: Questions about RAI and TED #1177810

What I see in the management guidelines is that people with mild ophthamopathy and high T3 and high TRAb levels are NOT recommended to have the RAI, even being a nonsmoker.

And, if you do choose RAI, then prevention of going hypO is key to preventing onset or worsening of the disease.

At least that’s how i am reading it.

[Author]

Posts