[Momof5]

in reply to: Made decision for surgery #1178433

Good luck, Amy. I will be following your journey.

[Momof5]

in reply to: TRab levels and possibility of remission #1178347

Sorry, Harpy. I missed your post before. Thanks for the info too!

[Momof5]

in reply to: TRab levels and possibility of remission #1178346

Thanks, Kimberly. You are a blessing.

[Momof5]

in reply to: TRab levels and possibility of remission #1178343

I’ve read thru that thread more than once in my quest for info. Thanks! My endo seems pretty good and she is actually pushing for me to stay on the pills vs deciding on another treatment right now. She says I have some positive things in my favor (no goiter, non smoker), but I do have high antibodies. She wasn’t initially going to test for them, but I asked and she said ok. She Stoll wants me to stay the course of meds (and said an 18-24 month protocol for now) and said we can talk more at our next visit. But, to me, it is hard to decipher the studies because they don’t really indicate at what time they are doing the antibody levels. If high antibodies at.the start dooms remission, then what’s the point (just speaking rhetorically)? To me, it would seem that the antibodies at the end of treatment are more what counts. Maybe I’m getting it confused.

[Momof5]

in reply to: TRab levels and possibility of remission #1178341

I’m curious if you know the answer to this (maybe not). When the study indicates “high levels of antibodies” does this mean when you are first diagnosed or when you are attempting remission? So, for example, you have high antibody count when you start, but you have small or negative antibodies after being on medication, I am assuming that is good news for remission.

I wonder too, if docs in the US are just not paying attention to the antibodies before telling people they are in remission and this is why our remission rates are lower than anywhere else.

[Momof5]

in reply to: Anyone else experience all this, or am i just a baby? #1177796

I want to add that I was very discouraged when I first began researching and didn’t find many “success” stories. In fact, it scared me a lot more. The thing is, I am amazed at how many people in real life I have now been in contact with or heard stories about who are doing amazingly well. I haven’t yet met someone who has successfully done ATD’s and gone into lasting remission, but I have talked to several who have had RAI and several (many more than I ever realized) who have had their thyroids removed via surgery (for cancer or GD) and have full wonderful lives. Those stories give me hope. I kid you not, I have probably heard at least 50 different stories.

I still haven’t decided on continuing the ATD’s or going for surgery (I’ve already decided RAI is out) and my endo is actually pushing me to WAIT until I am more stable to make a final decision. I’m thankful for that.

There is a part of me that says do the surgery and move on with life and there is a part of me that says “what if you are in that small percentage that gets remission?” What if…..

[Momof5]

in reply to: My April 9th 2013 Results 1 year later #1178350

Wow! That is great news! Gives me hope. Congrats.

[Momof5]

in reply to: Heart palpitations #1178334

I think I have read that palps are common with hypo too.

[Momof5]

in reply to: Heart palpitations #1178332

Yes. Mine are worst at night probably because I am more aware of them. This week, they have decreased a little each day and today, I can only feel them if I pay attention. My bp and pulse have come down this week, and I reduced the bets blocker to 25 mg because I was getting cold and my bp was getting pretty low.

(Did you ever get my pm?)

[Momof5]

in reply to: Dose increased yesterday/feeling worse today (?) #1178269

I had read that people started noticing a difference within a week or two (not necessarily here, I don’t remember where), and I was kind of dissapointed when I didn’t start feeling better that quickly. But, this week, my heart rate came down, as did my bp, and I reduced the beta blocker. I still have the shakes, but not nearly as bad, and I’m feeling a bit more emotionally stable. I also went back to the gym for some light (weight only) workouts, which also may be helping me feel a bit better.

[Momof5]

in reply to: TED again? Double vision again? Not sure I can do this again #1178182

Shirley – you are amazing! I wish I could give you a hug. I’m glad you seem to be doing better, and perhaps this is only temporary!

Keep fighting!

[Momof5]

in reply to: Dose increased yesterday/feeling worse today (?) #1178266

I don’t have a good answer for you, just thought I would tell you my experience. It’s taken me a good 3-4 weeks to start to feel better and for things to settle down. I started taking the Methimazole on March 21st and am just now this week noticing some big improvements.

Good luck (and no, you aren’t hogging the forum)

[Momof5]

in reply to: Well, here goes! #1173601

Wow. That would be wonderful news for you after the crazy emotional roller coaster ride you’ve taken! Praying for you.

[Momof5]

in reply to: Dry mouth #1178231

One day at a time. That’s all we can do.

[Momof5]

in reply to: how to not obsess about GD and TED – any advice? #1178259

Thanks, Raspberry. I’ll fight thru this eventually. My kids and I pray for everyone here daily.

[Author]

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