[JCC]

in reply to: Update TT on 8/13/13 #1180863

I can’t believe I’m 4 weeks post TT already!

I’m still feeling really good other than last Thursday afternoon/evening. I left work for a dental appointment and I was on EDGE for no real reason, my heart rate & blood pressure were up all afternoon (I don’t have specific numbers but I could feel it) and I was VERY irritable/emotional. Instead of going back to work after my appointment I went home and didn’t have a great rest of the day, but I made myself some tea, took a bath, watched some mindless TV and got through the evening. Friday was better, but I was a bit tired. Since then, I feel good.

I have my first appointment with an Ophthalmologist this Thursday. I have had vision troubles since I was a kid but have never been to an Ophthalmologist. I was surprised to read that my ENDO noted that I had “mild Graves’ eye disease”. I’m not sure what lead her to write that (other than I have big eyes…but I’ve ALWAYS had big, not bulging blue eyes) but I figured better to get checked and establish a relationship with a good Dr. just in case.

My post-op ENDO appt. is not until 10/1, I’m really curious to see what my numbers are. I don’t know what “normal” feels like but I find it interesting that several people have commented on how much “calmer” I am now – lol. Maybe that is just from having 2.5 weeks off of work – who knows?

I plan on snooping around here at the TED posts to get an idea of what I should be asking the Ophthalmologist this week.

I’ll Keep you posted.

[JCC]

in reply to: TT scheduled for mid-August… #1180553

Thanks for the responses & support. I’ve been reading all the “post TT” stories on here and they are very helpful. I love the Glad Press & Seal trick for showers; I’m going to get some of that this weekend. My new thought is if I feel better after the TT, the “battle of the bluge” should be easier.

Questions you all had:
Karen –
How did they actually diagnose your Graves’ back in 2005? Good question, I did have an uptake scan at the time, and I’m pretty sure they did an antibody test but I cannot locate my blood work results in my file; I’ve requested another copy from my PCP. Not that it really matters at this point but I’d like my file to be complete
All of us had doubts, second guesses, third guesses as to whether it was the right decision. You will have the same conversations over and over with yourself. I found the best thing to do was write down everything, keep a journal…This is what I was going through, I’m wrapping my head around it now and I know it is the best option. I’ll probably continue to second guess myself until I feel better.
Sue –
I would suggest that you focus your time and energy on consulting with surgeons to find one that you feel very comfortable with. I believe one of the biggest factors (possibly the biggest) in how successful the surgery and recovery is lies in the hands of the surgeon. The minute my Surgeon asked me to tell him, in my own words why I was there and to start at the beginning…I knew he was the guy. He’s a “head & neck” surgeon with a specialty in Oncology and the fact that I’ve heard “even though the biopsies came back benign, we are going to wait for the final pathology report” scares the crap out of me but I am confident that he’s already seen whatever he’s going to run into. AND I’m confident that there’s NO CANCER, because I feel like I’d know if there was:)
Talley –
I would be I would be concerned with the noduels – although maybe this is because I am still in shock that I had cancer on my thyroid which I don’t think would have been found without the TT. The nodules, especially the “suspicious” ones are my main concern. If they were not present I probably would not be having the TT on 8/13/13 (glad that’s a Tuesday & not a Friday), I would be exhausting all other alternatives first. Did they biopsy your nodules before your TT? What were the results of those biopsies?

I’ll keep you posted on how the TT goes next week.
Thanks – Jena

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