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  • irishgirl
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    Post count: 3

    I went through TED 20+ years ago and luckily for me my eyes returned to normal aside from the fat pads! I had them removed and no one could ever tell I had graves. A week ago I noticed in a photo, my left eye looked different? My endo told me yesterday that I do indeed have graves back in my eye. I can’t believe I’m going through this again. I had rai in 1993.

    irishgirl
    Participant
    Post count: 3

    I went to corneal specialist last year because I had severe eye dryness and double vision. My eyes were tearing constantly and I had to wear sunglasses inside and out. The glare from the tv made them tear.

    I was diagnosed with corneal epithelial basement membrane dystrophy. I also had scarring on my cornea which I found out were callouses on my cornea. Apparently I sleep with my eye partially open? Thank you graves! I had laser surgery to sand them down. I now wear a contact bandage to protect my eye and my doctor changes it every 3 months. I also use restasis 2x’s a day, vigamox and refresh eye drops constantly. At night I use a pm lubricant and press and seal wrap over my eye. It really helps seal in the moisture and I wake up without eye pain.

    Yesterday I went to my endo at Loyola and she said I have another bout with TED. It’s been 21 years since my graves was diagnosed and I thought my eye issues were behind me but it’s back. My left eye is getting quite large as I have been hyper from meds most of the past year. I see my ophthalmologist next week to see what the next step is.

    Life certainly has not been easy these last 20+ years. I still have the antibodies, a-fib and just all around general malaise.

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