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Thanks Shirley. Sounds like you have been through a lot. Hopefully doing well now.
I saw a neuro ophthalmologist twice at Mass. Eye and Ear last year. They have my baseline info. My double vision only occurs when I am laying down, or if I’ve fallen asleep sitting up it takes a couple to 5 minutes to return to single vision. I tried prisms but decided against them.
I’ll continue to see my local ophthalmologist to manage the other symptoms.
Symptoms have been present for about 15 months. I am hoping to enter the inactive phase soon.
Thanks again for your help.Jean
Thanks so much!
I do access Thyca and Advanced Thyca but not Light of Life. Will look into that.Would the same Graves disease antibodies be present in the blood of someone with thyroid eye disease from another cause?
In the whole scheme of things I need to stay on top of, the eye problem should be the least of my worries but in fact the symptoms bother me a lot and impact my daily life. The endo and ophthalmologist (from a major new England hospital) treating me for TED, seem puzzled by its appearance. I’ve started on a great regimen of eye drops and my symptoms are improving
. Still wondering if anyone else out there has experienced this.
Thanks so much! -
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