[connypie]

in reply to: high tpo and high antibodys? #1185121

hi liz, isnt it weird i have graves and now my husband shows up with this?almost sounds like the Bush’s.lol

[connypie]

in reply to: Graves eye disease reactivation warning #1185060

hi liz.i cant find the post you wrote about the ulcer meds interfiring with the levo.ive got to take motrin,put my back out really bad 3 weeks ago.the ortho gave me this new motrin(duexis) it has famotidine in it.and i cant remember if that was the med interfering with the levo.i tried taking regular motrin and after the 4th dose my stomach started hurting again,like the ulcer.stopped taking it.im taking the duexis 4 hours after the levo.i think famotidine is the generic for pepsid.do you still have that post or remember wich med interfers with the levo? thanks connypie

[connypie]

in reply to: Graves eye disease reactivation warning #1185058

hi liz, yes i thought it was a big jump too.thats why i alternated my meds.i truly never want to go back to being as hyper as i was.the insomnia,paranoia,blacking out from the slightest exertion.panic anxiety.my tremor was so bad i couldnt eat soup.everything fell off my spoon.the skipping heartbeat.i never knew what would set me off.then the doubts,am i mental? and the questions,what do you do all day.you dont work,but the house is a mess?nope,dont want to do that ever again.i picked up my new dose,but im gonna finish my .175 first(only have a week left).because frankly i am enjoying having energy and clear thinking.im an artistic person and when im low,i cant design, complete nor comprehend designs.i know what im capable off and losing these abilities is bad.made me feel like my brain was slowly shriveling up inside my head.ive been looking into t3,t4 meds.i seem to have alot of cognitive problems even when in range.a couple of years ago,my “mental problems” got so bad,i went to my pcp with a note because i could not verbalize how bad it was.i burst into tears and he read my note and promptly ordered a catscan.my tsh was 1.6 at the time.and then i had to practically beg him to change my dosage.i was send home with a prescription of lorezapame.so once we move,iam going to look for an endo and eye specialist that actually listens to me and is open to maybe trying the t3/t4 meds.i will probably try and not have the cataract surgery untill after we move.i dont drive,so thats not a factor.yes because of the graves i get pretty bad panic in traffic.i can be in the car all day long,no problem.as soon as there is traffic and i see those breaklights come on,the panic starts.ach.and this was only suppossed to be a quick note.lol

[connypie]

in reply to: Graves eye disease reactivation warning #1185056

yes Liz, and Kimberly, i was finally diagnosed with graves at 28.had RAI treatment same year.i was under tremendous amounts of stress,caring for my terminally ill son who was also handicapped.when he died 5 years later,my left eye popped.stayed that way for a few years and slowly went back in.but never completely.ive never been offered surgery.i have doublevision,puffy eyelids and droopy upper lids and of course pretty dry eyes.now i have cataracts.eye dr said maybe early cataract surgery because of the glare i get.i asked her repeatedly if the cataract surgery would activate the eye disease again,she assured me each time that it would not.now after reading this,i dont know what to think?oh sorry,i forgot to mention.my graves was discovered because of the eye disease.my sons cardiologist hadnt seen us for 6 month back then and noticed it right away.last year again tons of stress,got an ulcer for that.plech.dutifully took the meds prescribed until january.kept feeling worse energywise and moods.had labs drawn 2 month ago and my tsh was 9.2 and lordy lordy my cholesterol.ldl was 218!!!!! pcp raised my levo from .112 to .175 and added a statin. i knew that much of a raise would send me into orbit.took my old and new dose alternating for 2 weeks.around mothersday i had this perfect day.i woke up the sun shone,i had so much energy,my mood was so high.i havent had a day like that in years,well that was it.one day.i do have more energy and improved mood,but im starting to look angry again.you know that eye disease stare.got labs done yesterday.pcp is reducing levo to .150.tsh is .032,t4 is 2.06,ldl 94.so is my eye disease acting up because im hyper?also put me back on vitamin d,it went from 24 to 34.hes happy with that,i thought it was suppossed to be above 50.maybe by the time im 80 ill find a dr that actually listens to me.maybe somebody should invent a thyroidsuit,that healthy people could wear and experience this.were planning a risky move jobwise and location and im really trying to keep my cool and not stress out over it.because we wont have any health insurance for a few months.still paying on last years medical bills.well i rambled again.ach.

[connypie]

in reply to: T4-Only Versus T3/T4 Combination Therapy – Please Share Your Experiences #1184247

hi liz, i had a call from my new pcp today.my lab results came back.wow.havent had any bloodwork done in a year.tsh is 9.2 .and my ldl is 218!!!!total cholesterol is 293.my vitamin d is 24.my tsh is usually in range,my cholesterol was a little high,but nowhere near this high.so he upped me to .175 synthroid from .112, put me on a statin and 2000 units of vitamin d plus calcium.i dont know where all this cholesterol comes from,didnt eat anything different,even ate less sweets and more veggies.im gonna take the new synthroid meds every other day with my old dose for a few weeks.i dont tolerate such big increases,gives me hyper symptoms for months afterwards.didnt tell the doc this,brainfog wouldnt let me think of it.,there should be an emoji with a cloud hanging over it for brainfog.lol.and all of this from taking a ulcer med.i even asked the pharmacist last week and was told as long as i took thyroid meds and ulcer meds 4 hours apart,i was fine.i still cant wrap my head around my ldl going from 103 to 218 in a year.and the weird thing is,ive been feeling a little better these last few weeks,not much,but a little better.dont want to know what my bloodwork would have been 2 month ago.now we do the waiting game and repeat bloodwork in 2 month and see what happens.

[connypie]

in reply to: T4-Only Versus T3/T4 Combination Therapy – Please Share Your Experiences #1184245

Well,slap my Biscuits! I had an ulcer last year and was put on pantoprazole?in january he took me off and told me to take over the counter zantac.after a couple of weeks i doubled the dose because it wasnt working well.i felt worse and worse and went back to 1 pill and my neuro symptoms have improved a little.so, bad stomach=better neuro?hmm,wich one will i choose.sorry am being a little sarcastic here.ive been on proton pump meds off and on for years and if i dont take them i would eat antacids by the fistful.but always 4 hours after levo.

[connypie]

in reply to: T4-Only Versus T3/T4 Combination Therapy – Please Share Your Experiences #1184243

hi liz1967,i have a question.you mentionend something about proton pump inhibitors.did you mean you didnt take any for an hour after taking thyroid meds? or not taking proton pump inhibitors at all?

[connypie]

in reply to: Doublevision not covered by insurance #1184996

sorry forgot all about the decompression surgery.my eye doesnt look really bad,most people dont notice it until i take my glasses off.my eyes protruded 3 times i think.once both and two more times my right eye.it was bad for a few years.no insurance,so surgery wasnt an option back then.oh and i have dry eyes.tearduct plugs in the bottom.oh and i have doublevision closeup.12 inches and closer straight ahead.outer vision goes double too.

[connypie]

in reply to: Doublevision not covered by insurance #1184995

Thanks for the Feedback guys,actually i only asked the dr,s about the surgery.not the insurance.but did ask for treatment and office visits and insurance said it wasnt covered.my graves symptoms are mostly in my head according to some dr,s.i actually had an endocronoligist pat my knee and tell me =yuore alright.im in range for labwork,but godda…..t i have days and months i feel like horsepoop.everything gets blamed on my anxiety.i have alot of neurological symptomsin the last year.i know theres an article in ,here somewhere titled:this is not me or something.about higher brain function.as you can see im having a bad day.all the misspellings and ramblings are part of it.bad memory,ect ect.its gotten alot worse since i had breastcancer seven years ago.i thought i had brainfog from the chemo,but i seem to go through phases where it gets worse and then eases off a bit.it feels like im getting dummer every year.pretty frustrating for somebody that speaks two languages and was a master knitter ect ect.

[connypie]

in reply to: Carb Intolerance #1180952

hi sue,i have to watch my carbs too.the more refined flour is the more tired and lumpy i feel.ive been putting my bread in the freezer and only taking out what i need.had chinese food for lunch,sweet and sour pork,ate half of it.was yawning for over 3 hours.ive been checked for celiacs 3 times.i get really sluggish and bad tempered and my digestion sucks for aw while.bought this cookbook.400 calories or less.i feel pretty good when i eat stuff out of there.

[connypie]

in reply to: Managing stress and diet #1062409

hi,, that sounds so like me 20 years ago.stomach issues,always tired ect ect.this is what helped me.FIRST====Learn to say NO.you cannot be everything to everybody all the time.return the responsobilities to the parents and children you teach.you dont have to be a perfect mother all the time.i know its hard to do.so rid yourself of some of these things that cause you stress.second-you cannot be on a BRAT diet for more then a week,without suffering nutritionally.youre not getting enough nutritiens to function all day.your body is starving itself,wich probably makes the GI issues worse.ask your Gi dr if you have a sliding hernia on your stomach(heavy chest after eating).evaluate your life and simplify it.we all want to be perfect,but none of us are.and maybe speak to your dr about anxiety.did you get the 2 week med treatment for the h.pilori?you have to take every single pill during the course or it will not work.pain in the beh….but it works.ask you husband for help,your family ect.i find in todays society,that most young mothers that work full time are like a double booked dr.s office,always running and juggling this versus that and then the junkfood comes in because there is no time to cook.for me ,the more prepared a food is when i buy,the more preservatives it has,wich will set of my stomach issues.hope this helps,and RELAX.

[connypie]

in reply to: Out of interest! #1183355

teresa,the dry eyes can be helped with dry eye gel at night before bed,the gel is more effective then the drops for severe dry eyes.i have the eye disease and had to tape my eye shut for a while at night.i also had tearduct plugs put in my lower ducts.wich improved my symptoms by at least 50%.and for the dry skin i use oatmeal lotion or bath,the less alcohol in the lotion the better. hope this helps connypie

[connypie]

in reply to: Anyone else “here” homophones? #1183440

hi missygail,i had that particular problem while i had chemo for breastcancer.used wrong words forgot words ect ect.its been almost 5 years and im much better,still do it occasionally when im tired.

[connypie]

in reply to: Insomnia post prednisone use #1183254

i was on steroids for chemo and it affected me greatly.they had to reduce my dose by more then half.thank god i didnt have to take it for a long time.maybe it will take time to wear off?i had severe insomnia while my graves was untreated and since then iam jealously guarding my sleep.i sleep with earplugs wich helps alot,and sometimes i take lorezapam for my anxiety,wich makes my head go round and round at night.hope this helps. connypie

[connypie]

in reply to: Update on Vision therapy #1183493

thank you gladys for the tip.ill look into it.

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