[aubie822]

in reply to: Leg cramps?? #1067503

I started with leg cramps after being on methimazole for about five to six months…then it got into my biceps, neck and butt (there is nothing worse than butt cramps! ouch!)

I called my endo and told him about it. He dropped my methimazole down and had them add magnesium, calcium and postassium testing to my bloodwork, which all showed up normal. After reducing the methiz. they went away. They hurt, so make sure you talk to your endo about them. Good luck!

[aubie822]

in reply to: 1st Appt – What should I expect #1067446

Use this time to do research, think about it and pray about it. Do not let the doctors make up your mind for you—my general doc was all for RAI, when I mentioned medicinal he was like "no". But with my endo I told him I didn’t want RAI, I wanted to try medicinal first. He seemed a little doubtful but agreed–it is your choice.

[aubie822]

in reply to: A year later…good news #1067379

No problem James!

I know I haven’t been around here much, but I just blocked myself away from bad vibes and focused on myself and went with the treatment with hope and prayer. But that’s why I wanted to come back. It can be so freakin’ scary reading things, and people need to know that it’s not all doom and gloom, that there is hope. I’m not fully in remission yet, but I think I will be in about a year or less.

teacherhelper: it is scary. I remember I was more mad and upset when I found out "there was something WRONG" with ME! I was like, how does this happen?? But through support of family, friends and church I put on my big girl panties and worked through it. A few months after I began the Methimzole and the Atenol I had people telling me how much better I looked. I could tell as well!

[aubie822]

in reply to: 1st Appt – What should I expect #1067444

I’d do as much research on treatment options as you can. I was deadset on trying medication before doing any sort of RAI or surgery–when he mentioned my three choices I told him I wanted to try to treat medically and that was it. He said okay, explained it all too me and sent me off with a prescription.

I would have someone go with you, my husband went with me and he was helpful during the Q&A session with the doctor/assistant. Plus it feels great to have someone there "in your corner" so to speak. Good luck!

[aubie822]

in reply to: Leg Cramps #1067401

After being on Methimazole for about five months I began experiencing horrible cramping in my legs, biceps, neck and worst of all, booty! I talked to my endo about it and he changed my dose of Methz. and I’ve had no problems since. Talk to your endo about it, mine also had some magnesium/potassium tests ran during my bloodwork to make sure that was okay.

[aubie822]

in reply to: Hyperthyroidism vs. Graves #1075672

I think my family doc is leaning more to hot nodules. The more research I do, it seems that RAI might not be so bad for this–less chance of hypo than if it was Graves. Surgery to remove the nodules also appears to have a lower occurance of hypo. But if it’s Graves, I’m going for medication not RAI.

I guess next week will reveal more. When are you hoping to find out your final diagnosis?

[aubie822]

in reply to: Hyperthyroidism vs. Graves #1075670

Thanks Lynne!

I just want to try that route first, since in almost every other country it’s the primary treatment with decent success rates. My doc isn’t even sure if I have Graves now…it may just be multinodular goiter and surgery might be required. Which also might be better for me than the RAI.

I continue to do research to find what’s best for me. I’ll know more after the 18th. I guess I just have my mind made up I’ll try to do anything that’s not permanant before going to RAI route. My symptoms are so mild (some eye issue, hand tremors, throat clearing) and nothing major (sleep like a dream, no high heart rate, great hair, more cold than hot, not fidgety/anxious) so if the symptoms are minor, it might be best for me to avoid the permanant treatment–in my minds eye.

It’s all so confusing, but I’m going with my gut and putting my faith in prayers and God’s hands. I guess that’s all we got! ” title=”Smile” />

[aubie822]

in reply to: Hyperthyroidism vs. Graves #1075668

Lynne,

I’m getting the same things from my doc–although I’m early in the process and right now I’m just "hyperthyroid" which he’s describing as acute. He’s already seems to be pushing the RAI treatment, but I’m going to push for the medicinal treatment first. What does it hurt? If it works, I don’t lose my thyroid. If it doesn’t, then I know. I’ve prayed about it a lot, and that’s the message I’ve been getting back. If he doesn’t want to do this, I’ll go to Birmingham for a second opinion.

I’m 30 and don’t want to deal with lethargy, depression, weight gain. It is totally opposite of me and I want to try ever avenue before I do something inrepairable.

I’ve heard success stories about the medicinal treatment as well as failures. But I’m going to stick to my guns.

Good luck!!!

[aubie822]

in reply to: Just Diagnosed #1075594

We may have to get together for dinner/lunch!!! Deatsville is just across the road!

After much thought and research, I’m thinking against the RAI treatment. I know its early, and we still have a long way to go, but it sounds like the side effects after RAI would be horrible. Since my symptoms are mild, I’m going to pursue the medicinal route first. I don’t think my doc will like this, he just kinda jumped on the RAI bandwagon, but my hubby works with someone who’s wife had the same thing, tried the medicinal route first and was fine within 6 months without the need for thyroid zapping.

I’m going to stick to my guns on this…I don’t want to have to be hypothyroid at 30.

[aubie822]

in reply to: Just Diagnosed #1075592

Well, I went to my primary doc today, this is what I found out:

1. He’s not so sure about Graves, but I’m def hyperthyroid. My thyroid levels are five times above the norm.
2. I have three nodes, one on the right and two on the left (I’ve already named them!)
3. My symptoms are mild…hand tremors, eye poofiness, light sensitivity, throat clearning.
4. After the Nuclear Scan, he’s going to get with and Endo and we’ll go from there.
5. he’s thinking RAI will be the best route, but I’m a little worried about that….
6. He also has the possibility it may be a viral infection.

Other than that, I’m good to go. My scan is on the 17-18th. I’ll feel much better after that to rule out and "C" word…you know, the cancer. But he says he highly doubts that’s the case. So, i’m just waiting for a week.

OMG! I’m in Prattville, just 10 miles outside Montgomery!!! What a SMALL world! I’m actually going to Montgomery for my scan!

[aubie822]

in reply to: Just Diagnosed #1075590

Thanks all!

Thanks Ski! Yeah, the pictures on the Web are creepy…they should not be allowed to post those!! ” title=”Smile” />

Mine are just noticable in photos…but now I know what’s going on, I’ve adapted my "pose" to remind myself to close my eyelids a little bit.

Update:

I’m waiting to hear from the "doc in the box" that found all of this to get my final diagnosis. I’m also meeting with my primary family doctor today to get everything transferred to him.

They’ve set up a CT/Nuclear scan for the 17th. Even though no one has really told me what’s going on. I’m guessing I’ll find out for sure today. I’m excited about getting this all to my primary doctor, so I’ll have one person (the doc in the box has five rotating docs) to turn to.

Thanks for your welcomes! As I said, I’m sure I’ll have more questions. This site is great!

Cathycnm–what part of Alabama are they in?

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