[Andy]

in reply to: Share your Success Story! #1186296

I wanted to share an update – 6 years since my 2015 update earlier in this thread.

Between that time and through late last year my wife’s thyroid levels were stable when got pregnant with our first child. Because of the Graves she was referred to maternal fetal medicine as a high risk patient where they recommend extra growth scans for possible growth restriction.

Our son did come out “small for gestational age”, but happy and healthy. His thyroid levels were tested at birth and his TSH was low (t4 in range). But further testing showed no Graves antibodies and that his TSH came back into the normal range.

My wife’s endocrinologist also did a great job staying on top of the need for higher doses of Synthroid as the pregnancy progressed.

Mom is currently ramping down the Synthroid levels and is back on the hunt for the right dose.

[Andy]

in reply to: Share your Success Story! #1183862

Hi all

My wife was diagnosed at the end of freshman year of college in spring 2007 after passing out while using the campus gym. The rest of college was a complete rollercoaster for her, with grades, memory, mood, happiness, anxiety, etc. all swinging in relation to her thyroid levels.

She started by trying the ATDs and went into a remission that lasted about 6 months, which is when we first started dating. After relapsing, she decided to go ahead with the RAI.

After doing the RAI, she had trouble figuring the right dose of Synthroid. On one dose she would be jumping out of her skin and anxious, but one dose lower and she would be tired, lethargic, and wouldn’t want to get out of bed. She asked about alternating doses, but her Endocrinologist wasn’t a big fan of the idea. Finally in 2012 I got fed up with the swings. We went to the endocrinologist together and he wanted to switch her dose again, which she was about to agree to. I assertively (all but yelling) told the endocrinologist that her new dose was going to be alternating between the two doses.

Since then she’s been doing great. Sure she has her ups and downs, just like everyone else on the planet, but it doesn’t seem to be related to the Graves disease. She feels healthy, has gained most (if not all) of her strength back, has a great career, and all in all is doing really well.

I don’t know if she looks at these boards anymore, but when she was going through all of this, they really helped her as did the one conference she was able to attend. We do hope to make it to another conference together at some point. Good luck to all suffering from this, keep up your hope and know that it will get better eventually.

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