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  • Anonymous
    Post count: 93172

    I was reading through Pam’s message, and one of the statements has given me pause. Will the autoimmune problem still be with me, once the thyroid is gone? As I understand it (and I admit I’m not a doctor or scientist), there are a LOT of autoimmune diseases. Graves is very specific in that it attacks the thyroid. Your immune system sees the thyroid as an alien invader, like a virus or a transplanted organ, and creates a chemical that very specifically attacks that bit of tissue called the thyroid. If the thyroid is gone, then, WHY would those chemical antibodies still be produced? Or is production of these antibodies lowered? I guess my logic in opting for RAI was that if the thyroid scars over, and ultimately disappears (according to my endo this happens after RAI), then there should be no “trigger” for the autoimmune response of Graves. Who knows?

    I have to admit, up front, that I respond to medications differently than some people. I can’t even take the non-steroidal anti-inflammatories that are all the rage these days, with doctors. So my response to PTU may just have been the fact that my body didn’t like it. So I have to work with that, and others of you may not. With respect to PTU, however,it DOES matter how you take it. It is not like methimazole (Tapazole, etc.) which has a longer half-life and only has to be taken once a day. PTU is only potent for eight hours, so if you are lackadaisical about how you take it, it will not be as effective as it should be. And if you discover that you have missed a dose, you need to double up the next time you take your pills.

    Bobbi

    Anonymous
    Post count: 93172

    To Bobbie: I have graves disease and did radioiodine treatment a year ago this month. My endocrinologist told me that the RAI only takes care of your hyperthyroid problem. Your hyperthryoid problem is only a SYMPTOM of graves disease not the cause of it. I believe there will contine to be antithyroid antibodies in your system, however, they just can’t attack your thyroid any
    more.
    And yes, you are right, there are many, many autoimmune diseases out there, and your family members, related by blood, have a higher incidence of these.
    This is one aspect of my autoimmune disease that worrys me. Some other autoimmune diseases that are common are diabetes, ms, lupus, crones disease, (I think).
    Anyone who has children should keep an eye on them for thyroid problems.

    There is a great book called “Your Thyroid” that is very, very informative and one of the best books on thyroid problems that I have read. I can’t remember the author right now, but if anyone wants it, I’ll get it.

    Anonymous
    Post count: 93172

    Hi,

    Lynn’s right, the cells which produce the antibodies will still be around
    so you are still capable of producing
    anti-self antibodies, although they may be expressed at a lower level and
    you may not have any effcts from them.

    Don’t worry too much about the hereditary aspect, this is a multifactorial
    disease which has a genetic susceptibility part, but also requires
    environmental triggers like certain kinds of infection or stress, so you
    should be aware of family history, but it does not mean you will get the
    disease.

    Hope this helps,
    Ramone.

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