Viewing 6 posts - 16 through 21 (of 21 total)
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  • Anonymous
      Post count: 93172

      Hi

      Did your carpal tunnel surgery work? I had it done many years ago and it did not. Now I have neuropathy in both my hands and feet and none of the medicine really works for it.

      Yes, have your chiropractor check you over while. Mine has helped my neck pain and has helped me control the headaches that I get.

      Keep me posted on your hands.

      Diane B On-Line Facilitator

      Anonymous
        Post count: 93172

        Who told you that you were not a candidate for RAI when you have a TSH of .02??? Find another doc. Sometimes a good Family Practice doctor can help just as much as an Endo. I used an Endo at first, but found out later it was not necessary. The most important thing for “me” was that the doc understood Graves, had other Graves patients and the treatment recommended was sound. I was very pleased once I had the RAI. The eye symptoms reduced a little. But, I had thyroid eye disease (TED), too and had to see a Neuro-Opthalmologist – glad I did!!! After I had RAI, he was able to treat the TED. Now, my vision is no longer blurred or double, and better than before. I still have to watch the left eye because it bulges more than the right. I hope you get a doc soon. Joy in SoGA

        Anonymous
          Post count: 93172

          Diane,

          I had the carpal tunnel surgery in 1986 and 1987. I havent’ had any problems with them. I sew alot and I am a secretary and have had no real problems.

          Anonymous
            Post count: 93172

            I just ran across this thread…I realize it is an older one but I experienced the same thing. I was diagnosed with severe hyperthyroidism (Graves Disease) in July, 2007. I believe that I had been suffering ill-effects for many years (approximately 10!)prior to my diagnosis which had been attributed to “stress/anxiety disorder” and “perimenopause” and “menopause”. I was also diagnosed with “bi-lateral carpal tunnel with epicondilitis”! I got through but was quite relieved to finally get my diagnosis…not that I am happy about it!! Anyway, I, too, experienced terrible pain in my right shoulder along with pain in my legs and lower back, eyes and headaches.

            When I was started on Methimazole I was took 60 mg 1x day for 3 days and then dropped to 40 mg 1x day until my next Endo visit, which was 8 weeks later. (I was also taking 50 mg, 1x day of atenolol for A-Fib) By that second visit my lab results showed I had dropped from Hyper to Hypo. It was by week 6 of taking the meds that I experienced all of the aches and pains that I described above….one week before my lab work was done. When asked, my Endo said he didn’t believe the aches were connected to me going Hypo. Needless to say, my Methimazole was eventually dropped until we reached 15 mg, 1x day, where I seemed to “stabilize” at “normal” levels. I remained on that dose for about 5 or 6 months until my last lab work which showed TSH at 6.84, T4 Free at .08 and T3 Total at 105. All-time high for TSH! I knew before seeing the Doc that I was dipping into Hypo again because of the way I was feeling – sluggish, tired, anxious and puffy. Along with these changes, I again started to have lower-back aching and pain in the joint of the pinky finger on my right hand.

            Sorry to ramble on, but my conclusion after these past months is that the “pain and aches” coinsided with my hormone levels dipping toward the Hypo side…whether my medical professional agrees with me or not.

            I have not, at this point, considered RAI – my personal preference – and my Endo is ok with that. We will see what the future brings. I am in such a better place, mentally and physically, now than I was one year ago. I consider that a blessing in itself! I will also add that “under eye bags” accompanied my first dip into Hypo-land and I have a consultation with an eye doc next week to discuss what might be able to be done about that. I just turned 57 and feel I look much older than that due to the appearance of my eyes. I am not a vain person but I also do not want to be reminded every morning that I am living with this disease….there are certainly enough “non-visable” symptoms to take care of that!! I was a life-long contact lense wearer until what was diagnosed as “dry eyes” caused me to return to glasses about 4 years ago – I now believe all of those eye problems were early signs of GD.

            Again, sorry for the very long post. I was very happy to discover this website and have read with great interest many, many posts on this BB. Thanks to all of you for sharing. It was a Godsend to be able to read and realize that I was not “alone” in this.
            Good health to all,
            Hellie

            Anonymous
              Post count: 93172

              I am on week #4 of my reduced intake of methazole of (10 mg) a day…My weight has maintained its new high of 175,,which i have never seen in my life..I excersize 6 days a week powerwalking between 3-5 miles…I cant imagine what i would look like without the excersize but a one-bulged-eyed pillsbury dough girl comes to mind…When does the healthy self image come back?…When does the weight come off…?

              Anonymous
                Post count: 93172

                Patch – that is the 64 million $ question. I ask myself the same thing every single day. I, too, exercise more now than ever before and eat less now than ever before, and still the weight doesn’t seem to come off. So, I just keep at it and try not to get to down on myself. As long as I know that I am trying there is no reason to beat myself up over it. I only have this one life to live and I want to enjoy it while I am here…unfortunately, I didn’t embrace this philosophy fully until I lost my mother to an illness far too early. She weathered life’s ups and downs and still looked forward to each new day….unfortunately she was only given 67 years and was still looking forward to so many things.

                The ups and downs of living with Graves is surely very frustrating, but I have found that since I was diagnosed, which was just one year ago, I seem to have more patience and am much more relaxed with things. I attribute this to the relief of finally getting a diagnosis and explanation for the years of symptoms I experienced. I am sure, as reading everyone’s story on this BB proves, that everyone has their own way of coping. For now, I try to keep my outlook optimistic and do whatever it takes to limit my “down” days.

                Sorry, I rambled on a bit more than I had planned!! Patch, keep up the good work..and..walk with a smile on your face! :-)

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