[Anonymous August 18, 1997 at 11:59 am Post count: 93172]

#1157979

Yes, Welcome all newcomers! I wanted to let you newcomers know that I am also a newbie , been here going on 4 weeks now. This group of warriars are the best support and the most loving
group of people you will ever find.We support and offer so much moral support to each other so please whenever you need someone come here and leave us a note and your e-mail address and we will write you back as soon as possible.
At my first support chat Jake will tell you, My face and arms went numb and my heart rate jumped up. We were all joking around when this happened. When I typed in that I was going numb everyone came to my aid. I was so appreciative to them and
I am telling everyone who writes me about GD about this very wonderful group. The only problem we all have is that we seem that we can’t spell correctly. LOL Ah, Jake that is Miriam not Mirium LOL.
Please never be afraid to ask any question or feel stupid. We are all in the same boat. This group has taught me and my husband so much Graves Disease and what we all need to know to teach these dumb docs who know nothing about GD.
We do welcome all of you here with open arms!

Miriam

[Anonymous August 18, 1997 at 1:25 pm Post count: 93172]

#1054141

Welcome Erin and Paul!!

Erin and Paul were at the conference and are new to the BB. I did not see an
answer to Erin’s question regarding Tapazol and her daughter. Since I
never took Tap i can’t answer that question. Mayby one of you out there can
try to answer her question.

Talked to a lady I know at the local Indian Gallery and found out she has GD!!
Small world (or lots of folks have GD) She is one of the 90%ers who was
diagnosed had RAI and is now on synthroid. No problems!! Great to see it works.

For other newcomers if we do not answer your post withing a few day please put
a reminder on the BB that it has not been answered. We get busy and cannot
keep track of all they questions. We missed Mirium’s post for almost a week
and We try not to do that.

On another note we rented a movie called war party (yes and indian flick) and
there was one part where the medicine man said something that fits us. He said
one person cannot make a war party. I took that to mean that on the support
group BB we must work togather to be warriors against Graves. Alone it can be
tough but knowing that you have others in this with you it can be done. OK OK
a bit of a reach I know but that was my thoughts.

Latter Warriors!!

I will leave you with a Omaha Tribal Prayer

Wa-Kon-Da Dhe Dhu
Wapa-dhin a-ton-he

Father, a needy one stands before thee
I that sing am he

Jake (Achgook)

[Anonymous August 19, 1997 at 7:30 pm Post count: 93172]

#1157980

MARIAM,
HI,I AM A NEWCOMER AND NEED SOME INFOMATION.
I HAVE HAD GRAVES DISEASE FOR 18 MONTHS. I
JUST STARTED HAVING PROBLEMS WITH MY EYES
AND WILL SEE MY ENDO TOMARROW. I AM 34 AND
WILL I EVER GET BETTER?I DONT KNOW ALOT ABOUT
COMPUTERS OR TYPING SO I WILL TRY REALLY HARD
TO GET IT RIGHT.I REALLY DONT KNOW MY E-MAIL
INFO BUT MY NAME FITTERETTE,HOPEFULLY YOU CAN FIND ME.

SINCERLY,
DONNA

[Anonymous August 19, 1997 at 9:09 pm Post count: 93172]

#1157981

Welcome to the board Donna, this is a good place to be.

How are you being treated for your Graves’? I have been doing
the PTU route since June of ’96 and things have been up and
down, currently up (at least today, yesterday I got home from
work and promptly went to sleep on the couch). There are lots of
us who can attest to the long road it takes to feeling better. Good
luck with your endo, hopefully he/she will be able to give you
some good advice.

Computers can be intimidating, can’t they? I’m still having to have
my hubby teach me things and I use the darn things at work everyday.
Just wait until you get the hang of things and then you can really start
having fun with them. If you can make it to the Wed nite chats, you’ll
see a few of us having lots of fun with them One tip you might wish to use.
When typing, try and not use all caps, that tends to indicate shouting and tends
to be a bit hard on the eyes. Are you on AOL? If you are your email info should be
fitterette@aol.com (a nice easy one, not like my parents who are on Compuserve. It is
a good thing I have their email in my ‘puter address book as their email address is
about 9-10 numbers which are IMPOSSIBLE to remember, and the way my memory
still is…..).

You take care,
Jean C

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