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  • Anonymous
      Post count: 93172

      Breif history. I developed GD after my 1st pregnancy. For 7 months
      I thought being a new Mom was very strange – Insomnia, shaking, stomach
      problems, etc.. Weight loss was great! Luckly I have no visable signs
      (eyes,throat bulges) The PTU I am told is not perm. cure. My regular doc,
      my endo.,and my Ob/Gyn all tell me I must not get pregnant until this
      is fixed because:

      -> PTU causes MAJOR birth defects
      -> Possibility of a Thyroid storm during preg, could be fatal to me
      -> GD makes it difficult to get pregnant.

      But after reading about all the Post nuclear problems – hair loss, weight
      gain, depression – I’m really scared!

      I believe this is my only option if we want more children. Am I being
      told lies? Help – my cocktail date in next week – Nov 5

        Post count: 93172

        I am currently pregnant with my second child and as in my first pregnancy, I am on PTU. My first daughter is as healthy and perfect as any parent could ask for, even though I was on PTU before conception and during the first 16-20 weeks of pregnancy. She also appears to have normal thyroid functions. My second pregnancy is going fine (I’m about 15 1/2 weeks) and take two doses of PTU a day. I did receive the RAI treatment between the two pregnancies. I’ve been in both situations (using PTU and having RAI) and both times have been fine. I conceived easily both times. The only thing is that after the RAI treatment, I waited 12 months to conceive.

        Hope this info. helps and good luck!


          Post count: 93172

          Thanks for the good news. Why are you still taking PTU after the RAI
          treatment? Did you have all these terrible side effects I am reading
          about here – Depression, severe weight gain, etc..!?

          I am VERY glad the PTU has not been a problem. After taking
          with some people and reading this message board, I think my Drs. are on
          the very conservative side. My Drs. say to wait atleast 6 months. I think
          waiting 12 months was smart – but I am sad because I wish it could
          happen sooner (plus I am 38).
          Thanks PKP

            Post count: 93172

            Dear Peggy,
            I understand your concerns. PTU does cross the placental barrier which
            if on while pregnant will put you in a “high risk catagory” which you
            probably already are at age 38. But if you opt for that many women
            have delivered normal healthy babies while on PTU. The doctor will
            monitor your thyroid levels extremely close. You would probably need to
            see a Maternal-Fetal specialist. The doctors told me that GD makes it
            harder to conceive, but that didn’t affect my fertility.
            I am now 36 expecting my fourth daughter in two weeks. The first two
            I know I was an undiagnosed GD pt. while pregnant. My third pregnancy
            in 1993, I lost at 24 weeks gestation due to fetal abnormalities that
            had nothing to do with the Graves, but it was after that, that my symptoms
            really got out of control. I was finally diagnosed, and I knew there was
            something wrong for a long time. I opted to take the RAI,because I didn’t
            want to wait so long to have another baby. I would rather waited the 6
            months after RAI than the two years on PTU, then to only find that I
            would need the RAI after all. I could sense my biological clock ticking
            away. Anyway I got pregnant with my third daughter 10 months after the
            RAI. By the way Synthroid does not pass through the placental barrier.
            So my advice to you is to consult with a maternal-fetal specialist and
            then go from there.

              Post count: 93172

              Hi Peggy, This is exactly what my interest and endro told me about PTU, that is why I took the I131 as soon as I could. He suggests waiting 6 months after treatment to give the ovaries 3 months each to clear the eggs that were maturing while the bladder was getting rid of the radioactivity. I have a friend who had her thryroid removed in surgery due to cancer and she now has a beautiful healthy baby girl. She is on Synthryoid and it took awhile to get it straight, but not really that long. Her Scare from the surgery had not even healed completely!! Good luck. Joan

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