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  • Anonymous
    Post count: 93172

    Pam,
    I was not treated for Graves in Germany. I came down with
    it after I moved to Florida. And yes I found Germany very beautiful.
    I would love to go back to live for a few years again. We lived in
    Waldorf, Hessen outside Frankfurt. Now about Graves. It is up to the
    Doctors and your thyroid levels how long they go between treatments.
    Some people do get better after they have been on the pills for a year
    or so but it is not 50% here. PTU has the side effects of lowering your
    white blood cell count and can damage your internal organs if taken to
    long. The Atomic cocktail is radioactive iodine and it kills the thyroid
    or a portion of it. If done right enough is left to make for a normal
    life and you do not need to take any additional medicine. If you take to
    much or to little they have to give you replacment thyroid or do the cocktail
    again. There are other durgs used here to slow down the thyroid other than
    PTU but they are not in popular use and I don’t know what they are. Keep in
    touch and mayby when we get the CHAT room up and running you can get on-line
    with us if the time difference is right for you.
    Regards,
    Jake George :-)

    Anonymous
    Post count: 93172

    Jake, yes thank you I will send an envelope.
    It really sounds as if they are giving me and
    my throid more time to come back up to normal.
    The first round in 1993 I was on pills for
    1.5 years and no one even thought about atomic
    cocktails or operation. And TSH did come back to
    normal. Too bad that the whole thing started
    over again 1.5 years after that (6month ago). I
    still hope to make do without the cocktail and
    get of the medicine. You mentioned in one of
    your messages that this PCU or whatever it is
    called is not good for your body. Carbimazol also
    has some side effects, but I seem to be rather
    healthy. Is there an alternative drug to the PCU.
    There are at least two drugs in use to block the
    thyroid in Germany. But it is still no cure, it
    only levels you out. Why the thyroid does come
    back to normal (sometimes with some people) eventuellythey
    don’t know. But they say there is a 50% for it to
    go away and not come again – any statistics like
    this in America?
    What happens once your thyroid does react to the
    Atomic Cocktail, do you have to take thyroid hormones
    afterwards ?
    How did you like Germany – were you treated for Graves here
    in Germany?
    I was born in Bonn,but I moved done to the South (Heidelberg) to go
    to school and eventually ended up in Freiburg,very close to the
    Swiss and French boarder and to the Black Wood Forest.
    It’s beautifull.
    Pam Detrois

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