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  • Anonymous
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    Post count: 93172

    Hi Margaret –
    I’m sure there are others who can give you lots of advice on graves’
    better than I can. I was diagnosed about a month ago. I insisted on
    seeing an endocrynologist, see if you can do the same. It sounds like you
    have been prescribed ptu; this will suppress your overactive thyroid.
    After awhile, you may go into remission using the drug therapy. Sometimes
    remission is temporary. I chose RAI or radioactive iodine treatment.
    I will be treated in two weeks. It’s a small dose of tagged iodine that
    attacks the overactive thyroid, usually making it eventually hypo or
    underactive. Then there are replacement hormones, either synthetic or
    natural. I would read the last 30 days worth of messages, it’s certainly
    been helpful to me. Also check all the links here. Try and see a specialist, get and uptake and scan
    to confirm the diagnosis. What are your symptoms? I went in originally
    for heart palpitations, so I’m taking a beta blocker, it helps somewhat.

    If you are in childbearing years there are other ramifications for taking
    ptu. If you want you can email me at berkfoodhsng@igc.apc.org
    good luck, and keep searching, there’s lots of good info out there!

    Anonymous
    Participant
    Post count: 93172

    Hi Margaret, My graves was determined by my t3 and t4 levels and my tsh level along with a thyroid scan (x-ray) Just because your daughter show she’s hyperthyroid doesn’t mean she has graves disease. Let us know! Good luck

    Anonymous
    Participant
    Post count: 93172

    Dear Margaret, I would be encouraged by the lack of antibodies ref. the TSI test for your daughter. MY mom had graves, I do but thankfully my oder brother has found out that his symptoms are tyroiditis, hyper but not graves. Your dau’s treatment should depend on her profile, not her sister’s. While we waited on my bro’s test it just seemed so likely due to the family history, but we got good news. Best wishes to you and all your family.Jeannette

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