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Hi Norma,
I just can’t get over all the support we get from this board. Isn’t it wonderful?
My husband and I only have about 3 or 4 hrs. to spend together in the evening during the week, because of the way he works, but I was so devastated last night that I had to vent. I got home from the dentist just before he came home. He’s very supportive and usually lifts my spirits by making me laugh, but still I was very down.
I go to a primary care physician. A lot of people were telling me to go to an endo when my first dose of RAI didn’t work, but after reading some of the posts on the BB, I don’t think they would have done any better. My doctor doesn’t waste any time. I got my second dose of RAI five months after the first. How long has it been since yours? It could take as long as six months to start working, but my levels weren’t dropping much at all. In fact, my doctor said they were so little they didn’t really count. Actually, he tried to get me to get another dose after three months, but the radiologist refused.
I kind of lost it last night with Had Enough. I guess it’s because I know what “had enough” really is, and he/she apparently doesn’t. I feel bad about that now. When I get so depressed, I don’t know when to keep my mouth shut. I think everybody knows that by now. LOL
Thank you so much for your encouragement. It means so much to me. I hope you feel better soon too. Keep me posted. Email me if you’d like.
Maia
Susan:
I don’t know about ATD’s – I had RAI. But I do know that my thyroid levels effect my cycles and everything else around it (short, long, heavy, light, etc.) I’ve never found any scientific data, but I know the emotional (including sleep) responses that we normally go through as women also seem to be affected. I don’t think you’re nuts. What does your doctor say? Is it time for another test on levels? I know I told my endo I would be patient on the dosage he and I agreed on for 4 months – but, if I started to cycle around every 10 days again, he would hear from me!
Let me know how it’s going. I’d be interested in what you find out.
Hi,
I read this message and decided to give my opinion. Again is my opinion and doesn’t necessary have to match anyone’s opinion. I’m in the same situation, I have Graves, but I also believe Drs should not rush patients into any decision they could regret (we patients) in the future as it has no way back when it’s done is just done. When I was first diagnosed with the disease my Dr at that moment tried to rush me into RAI, my heart rate was 125 resting, I had lost a lot of weight, and I was feeling just terrible, also PTU was afecting my liver, I don’t say is right or wrong it was only his opinion, I decided to do some research about it and found out what side effects RAI has and how people feel after undertaking such a procedure, I changed Drs and this new Dr didn’t try to rush me into anything and controlled my heartrate with betablockers while some tests were performed. I’m on Tapazole now, I feel much better and this gives me time to do some more research and decide without rush what I WANT to do with my Dr’s advice. I also ran into other BBs where people did comment on RAI and how other approaches can also help (Skilled Relaxation, excersice and diet along with medication), some people also gave me the same advice. I feel lucky because I didn’t let my first Dr to rush me into RAI and that now I have a Dr that respects my opinion and is willing to help me as a human being not as another patient’s chart. So my advice for those considering a way out is to do some research and never let any Dr to force you take a decision you will probably regret and that has no way back. If you don’t feel confortable with your Dr you have the right to look for help somewhere else, is your health and your future. Again this is my opinion and DOES NOT need to match anybody’s. -
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