[Anonymous February 14, 1997 at 3:53 pm Post count: 93172]

#1164868

To Kendra and Jeanette regarding headaches and survey — I get clusters of headaches
for days on end when I’m feeling my worst. I had a really bad last week and have
had this pressure-type headache since last Thursday. The headaches seem to
parallel the fatigue, and I find myself desperately needing more sleep. Nothing
seems to help them–and I get this bad bachache along with the headaches. Usually
I just have to bear with it all until it all spontaneously abates.

I also have a question to pose to the BB. I’ve been on 30mg of Tapazole for
daily for 3 1/2 months, and in some ways am feeling better. However, in the
last two weeks I’ve noticed that something is happening to my fingernails!
They’re getting somewhat red, sore and irritated around the fingertips under the
nail bed. Does anyone know if this might be a reaction to the Tapazole (my
white cell count going down, maybe?) or is this just another *new* manifestation
of GD? Any comments would be appreciated. Thank you.

Happy Valentine’s Day to all of you wonderful folks on the BB…

[Anonymous February 14, 1997 at 4:18 pm Post count: 93172]

#1056952

Dear Kendra, The girl with no E-mail address. I have been lying in
wait for you. I read some of your earlier posts and have hoped that
you would fill out the survey. Do you know what I mean?
I have asked some questions about symptoms and treatments and about 75
folks here on the BB have responded. we will share with each other
and researchers and…whoever if it will help improve knowledge
and treatments. Can you play?
You can access the survey at

http://www.support-graves.com/links/graves/survey.htm Annette and archie put it there to help us!

Cool huh? Now as regards you monumental typing effort to share your headache experience, what a sweety!
I have printed it up to give to this 19 year old boy who has had them his whole life. been to a few docs but his parents
are in disagreement about docs, money and well, this kid falls through crack. But he got a job and will
soon have ins. and is eager for info so I’ll send it to him. Thank you

Hope to hear from you soon Jeannette

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