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  • Anonymous
      Post count: 93172

      Sounds familiar. My eyes ache sometimes, and I swear I can feel the muscles
      back there. Even closing my eyelid, I can feel how bulging the eye is.

      Anonymous
        Post count: 93172

        Bobbi, you seem to know a lot about Graves Disease. I would appreciate any info you could give me. I have Graves Eye Disease only in one eye. It protrudes some and I have some lid retraction. My Dr.says it hasn’t changed in about a year. My question is: Is it normal for that eye to ache? Sometimes I have a dull headache on that side of my head. Does that mean that my eye is changing or getting worse or something I will just have to deal with from time to time? I have had RAI but no surgeries on my eye. I have just started taking a low dose of Synthroid after becoming hyop.Has anyone else experienced the aching behind the eyes?
        Thanks,
        Kate

        Anonymous
          Post count: 93172

          Hi, Kate:

          I cannot answer this one, because I don’t know. Maybe Shari(SAS-Can) , Jake or Debby Jass could step in here?? They are the ones currently with the most “experience” with profound eye disease. I know Shari has mentioned something like you describe. If they happen to be off the board right now, Kate, I know they would respond to an email from you. They’re terrific at sharing their experiences and their information.

          Good luck,

          Bobbi

          Anonymous
            Post count: 93172

            Dear Kate,
            I just read your message and oh, what memories it brings back. My Graves’ Disease affected both of my eyes in a very, VERY profound way. I have had orbital decompression surgery, two strabismus surgeries, upper eyelid surgery – all on both of my eyes in the last year and a half. I am having my third strabismus surgery on February 11 followed by more eyelid surgery. So, you see, I have had some experience dealing with major Graves’ eye problems. I still have very dry eyes and double vision, but each surgery brings me a little closer to leading life as I did before G.D. hit. I have a way to go, but I am hanging in there, very grateful for the progress I have made thus far. You referred to “eye aches”. Yes, I have had this feeling often and over a period of five years. My best advice is to go see your opthalmologist – one who is experienced with thyroid diseased eyes. Have very regular eye exams. I don’t know if the aches mean anything other than the expected discomfort, but you will know for sure if you have your eyes checked and measured by someone who is accomplished with work regarding Graves Disease. It is so important to “stay on top of” your symptoms. Good luck and stay in touch – Jules

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