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  • Anonymous
      Post count: 93172

      I was diagnosed 3 years ago with Graves disease. I took the radioactive iodine and am now on synthroid. I have been taking synthroid for two years and they never get it right. Now my thyroid levels are very high again and we are trying to find out why. This time I have the protruding, swollen eyes. I never had this before. I feel like a frog or a bug. If they get my thyroid levels back to normal, will this eye thing go away? All I have read is bad news for the eyes. I already have very bad vision and have since I was 10. Now I am scared to death that I will go totally blind or not be able to wear my contacts. Is there any good news for the eyes out there? I am new to this list so please forgive the length of this letter. I felt a need to explain things.
      Shannon

      Anonymous
        Post count: 93172

        Help! Suddenly today while I was working my eyes started to have this light show going on, where on both sides of of my eyes there would appear a pattern of lights in a “v” pattern jumping around in a straight path going to the sides of my eyes. Does this sound weird or what? I have had GD now for 3 yrs and have had problems with my eyes, no bulging yet. I have an eye doctor familiar with GD that did a field test last month but he said he’d try it again in Nov. Has anyone else had this and knows whats happening here. Thanks!

        Anonymous
          Post count: 93172

          Can anyone help me about the eye problem question I had this morning. I’m going in to the dr tomorrow but am trying to find if anyone else has had this problem also.

          Anonymous
            Post count: 93172

            What you describe is something to call the doctor about right away. I
            have not had the problem but my eye doctor told me if that sort of thing
            happened to come right in. The light show may be retnal detachment starting
            so it is good you are going in tomorrow. Don’t want to be an alarmist
            but our eyes are important we only have two so we can’t be to safe sometimes.

            Jake

            Anonymous
              Post count: 93172

              Hi Colleen, I don’t remember the light sensation. My eye problem started being noticeable when reading and going from the bottom of one page to the top of another. It took a few seconds to focus. Also my GP noticed that my left eye was bulging a bit.

              I’m glad you are seeing a Doctor who knows the Graves Eye Disease. There are all sorts of symptoms and hopefully yours is not one of them, but, as I keep stressing – it’s better to be safe than sorry.

              Good luck at your appointment and let us know what he says – it may help someone else.

              Take care. SAS

              Anonymous
                Post count: 93172

                This sounds like what I experienced during my hyper stage (and which OF COURSE has nothing whatsoever to do with Graves’). I had a retinal tear or slight detachment which gave me my own “lightning” right in my head. At first, I kept thinking I was seeing car lights reflecting in the room, but eventually it got brighter. When the retina was checked by an opthalmologist, he could see the detachment. It lasted for a pretty long time, but eventually healed. Intermittently, I experience this to a slight degree. How about anyone else out there?

                Anonymous
                  Post count: 93172

                  I too had a regular laser show going on in my head for months. Mainly when I went to bed at night and closed (as much as they would) my eyes it was like watching a lightning storm. It improved gradually after surgery and hasn’t happened now for several months. In the beginning I was scared to death thinking something was dinging around in there or loose. Definitely something to tell the doctor though.

                  Anonymous
                    Post count: 93172

                    I have experienced the same problems. My doc said they are “visual migraines” and not related to GD. They are not very frequent but very frightening when they do happen, especially with all the other vision problems a lot of us experience. With me it lasts for about 30 – 45 minutes, the only difference being that mine start at the outer corner of my eyes and move in toward the center.

                    I am real curious to see what your doctor has to say about them.

                    Take Care.

                    Dawna

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