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  • Anonymous
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    Post count: 93172

    Hello EM–I love your idea! Count me in as a member of the Dead Thyroid Society. I’ll contact every levothyroxine sodium producing drug company I can find, and report back. Dianne N

    Anonymous
    Participant
    Post count: 93172

    People have written with suggestions and comments on the FDA report and although initially we have felt sort of helpless i think there is a simple effective way to get this taken care of before the year 2000……

    Someone mentioned starting a Dead Thyroid Society….no money to join ,,,,no requirements other than having one…..it encompases graves and hypo patients who are all under the mercy of replacement hormones……

    in order to join we figured out that it will take a phone call to your pharmacist to see who the local representative is for the thyroid medicine you take ….and call him and tell him that you are aware of the FDA report and how serious you think it is that they correct the problem faster because you will take the first product that comes out with a consistant dose!!!!!!!! ((( I am not trying to put words in your mouth just suggestions..as to what to say…))))))

    Drug companies are on the net now and have 800 numbers for you to call or even write to them…..when you think that this fda investigation was talking about what some 50 or so cases……..WHAT IF THEY GOT A COUPLE HUNDRED CALLS FROM ACCROSS THE COUNTRY??

    i have sent out over one hundred and eighty of these reports and hopefully those people shared it with others who take it so………………

    even though our voices may be hoarse from being hypo


    we should be heard


    or at least give them an incentive to move more quickly to alleviate the situation here that is or could be interfereing with the way we feel for the next three yrs!!!!!!!!!!

    What do you say—-can we do it??????
    Want to join the DEAD THYROID SOCIETY???

    thanks

    Anonymous
    Participant
    Post count: 93172

    Dianne N.,

    This is a great idea EM came up with. How many drug companies do you think there might be? Maybe they all have E-mail, then I could e-mail them. If you get their addresses or phone numbers let me know.

    Thanks,

    Michele

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