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H there
Thanks for the very clear synopsis of your endo visit. It makes sense. Did the endo say that with your high levels ATD’s probably wouldn’t provide a long term solution. I wonder what is meant by a long-term solution. I thought it could be up to two years to get levels ‘right’, and there also is a chance of remission. If you have the RAI, then you wouldn’t know if there were to be a remission. Then do you go hypo and have to take pills for the rest of your life. Not clear. Hope I’m not confusing you. It was sunny here and it *was* a good day, must have been your greetings.
hazelHi!
I have a question…it may have been asked before, and I may have missed it…and I’m sorry if I’m repeating myself, but, is there a “limit” to how long a person can be on ATD’s? If after 2 years, there isn’t a remission, is it safe to stay on ATD’s if your feeling “well”? I was away from the board for a couple of days, and boy, I’ve missed a lot of conversation, here! My daughter’s appointment with the endo. is tomorrow, and I’m considering asking for her to stay on the PTU for a while longer (she’s been on almost 2 years) because things are going so well for her right now, I don’t want to mess with it!
Thanks for any responses!
RubyThe specialist I see here in England is head of endocrinology at the Christie Hospital in Manchester, just about the best known in England. He says he’s had a lady on Carbimazole (UK version of Tapazole) for over 20 years and she’s doing fine. He has no problem with giving ATDs to people for life as long as they feel well and have no side effects.
I recently finished having the radiation therapy done to my eyes. My endo has me scheduled for a consult on May 11 to talk about my having the RAI. I’m not sure that I’m ready to take that step yet.
I have been on PTU for over 1 year now and I feel the best that I have in a long time. The medication has done wonders for me in that some of my symptoms have gone away. I have read a great deal on the RAI and how it can cause a person who is “hyper” to switch to “hypo”. My concern is that if I have the RAI done will it cause more complications with my eyes. I have enough troubles with them so as it is.
Sometimes I believe that you should leave well enough alone. If PTU is safe enough for patients to be on the drug for years at a time, then I don’t see how it could make a differance if you wait a little longer until you are absolutely sure what to do.
I have decided that I will not make the decision or let my endo dr. make the decision until I am 100% sure of myself. They may think that it’s the best treatment at the time, but we are the ones who have to live with the side effects to it.
Good luck with the appt. I hope that you get more info before taking that next step.
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