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  • Anonymous
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    Post count: 93172

    What is it with this lousy anxiety? As if the rest of the disease wasn’t
    bad enough! I’m tired of being tense and anxious. Tired of taking xanax, which
    sure isn’t stopping my racing heart when it decides to start pumping.
    I really hope RAI helps you, this thing seems to mess up our lives, change
    our plans….I’m fightin that with all I’ve got! Take care of yourself, I’ll be praying
    for you. Glynis

    Anonymous
    Participant
    Post count: 93172

    Glynis,its 4am in the morning can’t sleep don’t think about
    the heart ,try to take your mind off it because its going to come back
    anyway thats why im up and can’t sleep i wish i could sleep forever
    sometimes, you might have to try a new drug im on beta blockers
    for now but that might change soon.Im a smoker to and i know that
    i will have to quit that soon, thanks for listening,and good luck.

    Anonymous
    Participant
    Post count: 93172

    I originally was given a betablocker (back in late August), but had a bad reaction (due to the first doc
    giving me a mega dose…it was terrifying). Yesterday, my Internist put me on a different
    betablocker….so far, so good. Lowest possible dose. My Endo said if that didn’t cut it, he would up my
    dose of PTU by 50 mg and that should help. My main goal is to be able to heave
    the Xanax crap. Even in low doses I am convinced that it is too addictive…everytime
    I cut back on it within two days I end up with insomnia, etc.

    My Internist (who thought he could handle all of this without referring me to an Endo)
    seemed a little “put-out” that I had taken matters in my own hands and seen an Endo on my
    own. He was referring me to a Radiologist before he sent me to an Endo! I know he just
    didn’t want to see me suffer any longer and he is a nice guy, but I didn’t mean to injure
    his ego….and seeing an Endo was very important to me.

    It rots being up at 4am, knowing you really want your body to cooperate and be
    asleep in bed!!! I didn’t go to sleep until after midnight, then at 2am my baby woke up for a bottle
    and at 4am my 3 yr old got up with a bad cold and needed medicine and crawled in
    our bed, then at 5am I had to get up to give myself my PTU and my 8yr old her
    seizure medicine. I did fall back asleep until 7. It’s like your body is so very
    tired, but won’t cooperate by sleeping right.

    Take care and have a happy Turkey day! Glynis

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