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  • Anonymous
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    Post count: 93172

    Hi Cathryn:
    I’m glad you have a doctor who deals with Graves Eye Disease (also known as Graves Ophthalmopathy; Graves Orbitopathy; and Thyroid (Graves’) orbitopathy; as welll as Thyroid Eye Disease). I don’t think cold packs will help with the little fat pillows, only with the general swelling, and it doesn’t do a lot for that. Has your eye specialist recommended any steroids to reduce general swelling? You might want to discuss with with your specialist and if there are any other options.
    I have seen photos of ‘before’ and after’ surgeries, and the folk look terrific.
    Hope you are in good spirits
    Hazel. ;o)
    p.s. (“inherited’ my foot! Do you think h/she meant the disease…just wondered…
    p.p.s. if you find *anything* that works let us all know.

    Anonymous
    Participant
    Post count: 93172

    Thank you Cathryn and Hazel for replying to my message and for the information. I will be seeing my opthamologist in a few weeks and plan on asking my husband to accompany me – with support I think that I can ask the hard questions such as his actual experience with graves eye disease/what percentage of his patient population have this condition and about pro-active treatments, like steriods. Thanks for the tip about CT and MRI – I will ask about being referred for those tests also. Again if anyone out there lives in the Northern Virginia/DC area and can suggest any top notch opthamologists I’d greatly appreciate it.

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