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  • Anonymous
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    Post count: 93172

    Here’s what my dermatologist gave me as far as a description of pretibial myxedema. It came from a textbook page that she xeroxed for me.

    “Localized (pretibial) myxedema develops as erythematous (reddish) to skin-colored, sometimes purple-brown or yellowish, waxy, indurated (hardened) peau d’orange (orange rind) nodules or plaques. Usually, they are located on the anterolateral aspect of the legs or feet. Localized myxedema may also present as a diffuse non-pitting edema on the shins or feet evolving into elephantiasis.” (The parenthetical remarks are mine — trying to make some sense of the medical terminology.)

    I don’t know if this will help you and your doctors figure it out. Have you seen a dermatologist? My doctors hadn’t seen pretibial myxedema either, but my dermatologist recognized it immediately.

    Bobbi
    NGDF — Asst. Online Facilitator

    Anonymous
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    Post count: 93172

    hi elisa,
    i have localized myxedma on my legs and feet. it is non-pitting. none of the doctors i seen ever heard of it and i actually had surgery on my foot because they didn’t know what it was. i finally went to see a dermatologist. he knew what it was right away. every 2 months i get cortisone shots (about 25-30 in a 2×2 lump). it is very painfully while he does it, but the swelling goes way down. then at night i put a cortisone lotion on and wrap my foot in saran wrap. it has helped but not gone yet. i quite going for the shots because the pain was to much, but they do help.
    jody

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