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  • Anonymous
      Post count: 93172

      Some of you had asked that I report
      periodically on my progress since
      going off ATD in Nov. I’m still in
      “remission”. At least by my definition
      I am. I still have only the eye

      Today I raced a 5K in a time of 23:35
      which placed me in the age-group of
      50-54 year old women. That averages
      7:34 per mile. I’ve been running 25-
      30 miles a week since May when I
      went on the ATD. I feel great, except
      for needing to keep stress levels low.

      Thus far I’m learning how to say no
      to stress increasing activities that
      are not absolutely necessary. Perhaps
      if I had learned that long ago, I’d have
      never gotten GD. Thanks for your

        Post count: 93172


        I was just wondering, I have been told that I could go into remission after RAI, but of course, I haven’t. I’m on “S” medicine and am feeling fine and my last blood test results showed all my levels in the normal range.
        What does it mean to go in remission? After all, I thought that RAI pretty much kills your thyroid and that hypothyroidism is inevitable and and medication for life. So, does that mean your thyroid still works if you go into remission? Hmmmmmmmmm. I’m sort of confused….
        Can anyone give me clarification? Thanks, Lisa

          Post count: 93172

          “Remission” is defined as being able to go completely off the antithyroid drugs for a year without hyper symptoms redeveloping. We have our own thyroids, functioning at the proper levels during remission. It is called “remission” because at some future time it is likely that we will, once again, be hyperthyroid . We still have the Graves’ antibodies, able to cause problems for our thyroids. But that can be years away. In many cases, however, the antithyroid drugs do not bring about remission. They effectively work to block our thyroids from taking in too much thyroid hormone, but we cannot go off them and remain euthyroid. If this turns out to be the case, then a decision has to be made about staying on the ATDs or trying one of the more permanent cures for hyperthyroidism. Please note: I said cure for HYPERTHYROIDISM, not cure for Graves. RAI and surgery eliminate the possibility of a recurrence of hyperthyroidism in the vast majority of patients by eliminating the thyroid, or leaving so little of it remaining that even in a hyperactive state it cannot cause health problems. You might, in fact,still have functioning thyroid tissue left after RAI, or after surgery, even if you go hypothyroid. Because the potential side effects of taking the appropriate dose of replacement hormone once a day are significantly less than the potential side effects for the ATDs, many doctors prefer to move on to another treatment if the ATDs do not bring about remission, or if our own particular medical situation leaves it unlikely that we will gain remission. It involves a risk vs. benefit judgment on their parts.

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