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  • Anonymous
    Post count: 93172

    The emotional side of this disease is not nonsense. It is very real. I have had
    trouble with support from my family. They just dont get it, and they can’t get it.
    This disease is beyond their scope of thinking. For me, it was because I just looked
    tired all of the time. It even took the doctors quite awhile to figure out what the
    heck I had. As for my family, they try, and they get really frustrated. I have gotton
    better at stating my needs. I say things like, “I need to be alone now” or “Please do
    this for me….” It is a never ending stuggle, but well worth it. It has been 3 years
    and my family is coming around, yours will too….best of luck….Carolyn

    Anonymous
    Post count: 93172

    Yes Sirree Bob! I have the same problem. My oldest brother who’s a Colonel
    in the United States Air Force doesn’t believe that I have GD. He says that I’m actually faking these symptoms. He also started making stupid jokes about being “disabled”. My second brother is a teacher who understands some of the problems t hat I’m going through. He turned around and said “I’m sorry, but you’re just getting old, join the club”
    My neice thinks that if you have a noticeable deformity, then you are disabled (and her father thinks that She’s more mature than I will ever be..HA!)

    I wish they were a little bit supportive. But I have some other resources. Like this BB, a Social Worker who’s help I will never forget, some teachers who have the same interests as I do and
    my german shep-retriever-collie-mutt dog. I usually cry on him, but he doesn’t like it. It’s like when you tell him it’s bath time.. Well, gotta go back to school and observe overt behaviors.

    Ann N

    Anonymous
    Post count: 93172

    Lisa, I think Ann N. hit the nail on the head. Unless people see
    a physical manifestation they think you are making it up/faking.
    Asthmatics and children with ADHD really suffer because of this. My own
    Mom thinks that ADHD (Attention Defecit Hyperactivity Disorder)is
    faked/bad parenting-even though brain studies show the differences
    between children with and without attention defecits. Other peoples’
    perceptions are their reality. Our jobs seem to be constantly educating
    other folks on the issues. The only suggestion I might have is hit them with
    the chemical and physical facts rather than how one feels. TSH levels,
    pulse rate/minute, blood work, give them a short article (use the Web).
    Point your friends to the Web and the Foundations. Smack ’em with facts.
    Know that lots of folks support you.
    results.

    Anonymous
    Post count: 93172

    I’ve just been diagnosed with GD a month or so ago. They’ve been toying
    with my thyroid blocker medicine dosage. First, I go to low thyroid. Then
    they raise my meds and I go back up. During this time, I was an emotional
    disaster! I felt premenstrual X 10000!!! I was very moody, would cry at the
    drop of a hat, and was pretty cranky. I reallized this, and was upset with
    myself for acting this way. My boyfriend seems to think the emotional
    side of this disease is nonsense… he thinks I’ve just been a real selfish
    *itch lately and doesn’t want to deal with me. Has anyone else dealt with this
    kind of lack-of-support from loved ones? What to do?

    Anonymous
    Post count: 93172

    Boy, do I hear you. I was only 16 when I was diagnosed, and it sucked. Before I was diagnosed my parents were accusing me of using drugs because I shaked all the time, and my eyes were bulging out. Then my mom got on my back about weight gain. All I would do is yell at them. it didn’t help, but that is just how I was then! I ‘m always here for ya if you need it. It will all go up hill, it takes a while, but they will understand the disease some day. Tak Care.–Jodi

    Anonymous
    Post count: 93172

    Boy, do I hear you. I was only 16 when I was diagnosed, and it sucked. Before I was diagnosed my parents were accusing me of using drugs because I shaked all the time, and my eyes were bulging out. Then my mom got on my back about weight gain. All I would do is yell at them. it didn’t help, but that is just how I was then! I ‘m always here for ya if you need it. It will all go up hill, it takes a while, but they will understand the disease some day. Tak Care.–Jodi

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