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  • Anonymous
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    Post count: 93172

    Help Anyone….I have thyroid surgery scheduled in 2 weeks. I would
    like to hear about your experience. I have been in treatment for Graves
    since January 21, 1995. I’m coming around the bend and don’t know what
    to expect. I am on 350mg PTU a day and am still hyper. I feel like
    I’ve been run over by a truck. I hope this is the right direction. It
    is hard to make educated decisions when your brain is in a fog!!! RAI
    is out of the question for me…..and I see most Graves patients follows that
    that path. Has anyone out there had the surgery? How did you do with
    it? Did you end up with the RAI anyway?

    Thanks for all your support…Holly

    PS: Lisa: I’m also from PA
    PS: Pam Detrois: I have an exchange student in Brehem, Germany

    Anonymous
    Participant
    Post count: 93172

    Holly:
    I had a thyroidectomy a year ago last November. Any medication I used would not regulate my thyroid and I was having some eye problems.
    I felt awful for 2 days after the surgery but then things improved.
    Two months later I developed double vision while at work. I was very upset to say the least. I had to wait 10 months to be sure there would be no changes and then had eye muscle surgery this past October. That surgery was 100% successful. I only take synthroid and feel realatively”normal”. I do not regret my decision. It was a rough path but worked for me.
    Good luck, Dot

    Anonymous
    Participant
    Post count: 93172

    What hospital are you having your operation?
    I had a thyroidectomy at Grandview hospital, Sellersville PA November 1994.
    It was successful for me.
    Good luck, Dot

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