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  • Anonymous
      Post count: 93172

      Thanks to Bobbi and all of you for the great insights! After reading other postings on the BB, I see that many others have faced the same dilemma. My daughter’s endocrinologist has pushed us to do RAI for over a year, and we resisted until last October. (She is being treated at a well-known children’s hospital and we are also consulting with a endocrinologist who has treated Olympic athletes.) I thought that my daughter was O.K. with RAI (if necessary) until last weekend. The last blood test, her T4 (10.3) was in range, her TSH (.03) was suppressed and her T3 (208) was just barely in range, having increased from 171. Evidently, the doctor was ready to do RAI immediately, even though she told me in October T4 had to be 15 to do it, but her “group” cautioned her to wait. My daughter appears to be doing fine in school and elsewhere and her swimming has never been better. We’ll just have to wait and see what happens — next blood test on Saturday. Thanks again to everyone. Pam

        Post count: 93172

        RAI was never considered a treatment for children until the last year or two.
        You have surgery as another alternative. One that leaves no legacy to worry about
        40, 50 or 60 years later.
        I AM one that had radiation 45 years ago when I was 12 and NO ONE else on
        this board had this experience. I am not doing at all well and have many
        thyroid related problems. Please consider continuing with ATD’s or finding
        a surgeon. Don’t think short term.
        email me if you want more details.

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