[Anonymous June 22, 1998 at 5:36 pm Post count: 93172]

#1050525

Dear Lesli:
Hi there ,just had to post you also as I have been putting on the weight so much that I feel like an over-ripe tomato thats getting ready to burst,mind you I ‘am on the prednisone,so that certainly has something to do with it. I was hyper also and gained though so your so right that is a myth that needs to be put out to pasture.We all have enough to worry about little-own how come I gaining when I should be losing–who needs it,nobody,take care Lesli,little warrior Barb.

[Anonymous June 23, 1998 at 3:15 am Post count: 93172]

#1149476

From what I have read it seems that the appetite increases. Personaly my weight has been fluctuating. I believe this is because sometimes I feel like I need to rest more than be active.
good luck

[Anonymous June 23, 1998 at 8:43 am Post count: 93172]

#1149477

I too am gaining weight, even though I am supposed to be losing it!!
When I first had Graves Diseas 4 years ago I lost 20-25 lbs. This time
I gained it!! I too have tried to eat healthier and am trying to work out
everyday. Sometimes its hard because I am so tired. I did the radioiodine
about 6 weeks ago and just started on Synthroid which is making me feel a little
better.

I am curious though – to those of you who have lost the weight – How
did you do it? I gained the weight doing nothing out of the ordinary and am
wondering if I might take it off the same way. When did you first notice it?

I would appreciate any fedback!!

Thanks,

Alyson

[Anonymous June 23, 1998 at 8:36 pm Post count: 93172]

#1149478

I have had Grave’s for about 6 years. Just before I got pregnant with my daughter, I lost a bunch of weight. I did nothing different in my eating habits (I’m a sugarholic). I went from about 140 to 109 (the thinest I’ve ever been in my adult life!!!! Then I got pregnant. I didn’t gain very much weight and during the pregnancy my left eyelid retracted. I went to an Optomoligist who diagnosed Grave’s. He said to wait until I had my baby and then get tested. It came out positive. Nothing was done for treatment because I was “borderline” hyper. My weight went up to between 130 and 140 for about 3 1/2 years before I had my son. I didn’t gain much weight with him either. After my son was born I seemed more tired (even though I had difficulty falling asleep at night), I lost interest in sex, I was riding an emotional rollercoaster. My husband asked me to see if there was anything emotionally wrong with me. He thought I didn’t love hime anymore due to the fact that I did’t want to make love with him. I went to a specialist, who did all the tests and said that I still was “borderline” hyper. About 9 months ago I started gaining weight like crazy. My doctor told me that 2 in 10 gain weight with Grave’s. Oh boy, I’m one of those lucky ones!!!!! So here I am, back up in the weight dept (170 lbs as I write this). I can’t seem to lose it. My new doctor has put me on PTU, but tells me that I will have even more problems losing weight. I spoke with his dietician (who also has Graves and diabetes)and she is trying to help me with a diet I can live with. I know there are those of you out there that are probably thinking to yourselves that “if only you could gain weight”! I have been heavy all my life, so to be finally thin and wear “cute” clothes was a miracle for me. It’s better in my opinion to have to eat to keep weight on than to starve because if you do eat, you’ll become the “Goodyear Blimp”.
Are there any other people out there that are “borderline” like me but still seem to have some of the “bad” side effects? I am still on an emotional rollercoaster, I have slight tremors in my hands, I’m always hot, I’m always tired (even though I have started to exercise which just makes me more tired instead of increasing my energy levels), I still have trouble falling asleep, but I have started taking Melatonin which does help, I still am lacking in the sex drive dept, my joints have started hurting. Please email me or post to this message board. I think it’s great that we have this to air some of what we are all going through. Thanks for letting me vent my problems, even though I know there are alot of you with alot worse symtoms that what I am experiencing. Hope to hear of some of you. Thanks again.

[Anonymous June 24, 1998 at 12:03 am Post count: 93172]

#1149479

I read a post by Cindy and I thought what she said was sooo true. “I became a vegetable because I felt so crummy”. For me I know that is a big part of it. I have gained about a size, enough that clothes with waist bands either don’t fit or are uncomfortable. For two years I have been basically sitting around the house with ice packs on my eyes or listening to the radio or whatever but not getting any exercise. I was too tired or in too much pain to get the exercise. I wear clothes that are not fitted so did not notice the weight gain until I got out my summer clothes this year. I still don’t have any energy but am trying to get some walking in every day. Eyes use a lot of energy and when they don’t work or when I am constantly straining to try and focus what would have been a regular day’s activities before will set me back for several days of rest after attempting anything outside our home. I know for me it is the lack of exercise. I also have to remember that it took me two years to put on these extra pounds and it is going to take a while and some effort on my part for them to come off. That is the hard part. Even tho I know being hyper was not good for me the couple of things I liked about it was wearing that size 6 and eating everything and anything on those cruise ships and not having to worry. Well we can’t have it all and I’m pretty grateful for what I DO have in my life. SAS

[Anonymous June 24, 1998 at 1:34 am Post count: 93172]

#1149480

I saw your size 6 and became envious. I was diagnosed with Graves’ Disease today. I lost 39 pounds, from 129 to 95. I am 5’5′, I look anorexic, undernorished and deathly. I buy size 3 cause I cannot find 1’s. I would love to be a size 6. According to my endocrine doctor I may gain 15-20 pounds, if I am lucky. I have no desire to look like Kate Moss!!!!! I will go on drug therapy on Friday, then surgical removal of my thyroid. Thank goodness this disease isn’t a killer!!!

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