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  • Anonymous
      Post count: 93172

      Hi Gerri

      I’ve know that you are having a difficult time and I’m sorry for that. Yes, you have dealt with some big crisis. You have a lot of healing to do, both phyiscally, mentally, and emotionally. Your surgery is going to take time to heal your body, plus your mind. Anytime we have a surgery we can have problems. I know everyone gets so tired of hearing about “it’s going to take time”, but trust me it does. You are not alone in both dealing with Graves Disease, losing a daughter, and caring for and losing a mother. I know of a few other people on this board who has dealt with those. So you are not alone. We understand.

      I realize it is tough to deal with those people who make comments to you, but you need to ignore them. They will not listen to anything you have to say, so don’t bother yourself with getting upset trying to figure out what to say. The best thing is to ignore them.

      There are others on this board that I know of who have gotten stares from strangers, or friends. Ignore them. There will be a day when your eyes are better. Then they will stare at you because you are so pretty. Keep that in mind. You have a huge mountain to climb, but you will get there and we will help.

      Diane B On-Line Facilitator

      Anonymous
        Post count: 93172

        Thank you Diane for your wonderful encouragement…Im going to try harder to ignore those who try to hurt me. When I’m stronger I’ll be better to deal with those problems…right now I need to work on getting better. ty Gerri

        Anonymous
          Post count: 93172

          I don’t know what to tell you about the folks who make fun or denigrate what you are going through. I know it just makes a horrid situation worse.

          I’m sorry to hear about the double vision issues. I’ve heard from many folks who have had to have strabismus surgery after their decompression because of the doubling. That surgery is apparently much easier on you than decompression. It involves “tweaking” the muscles into alignment. One thing you did not mention was whether or not you have tried prisms. These are special lenses that can be ground that make the adjustment for the amount “off” your eyes are. There are temporary prisms available to help someone test whether they should get specially made glasses or not. If you haven’t tried this, or inquired about it, it might help. I could not wear prisms when my vision was woggly/doubled because there was no consistency to the woggliness. But many people have found them very helpful.

          Please try to keep your chin up.

          Bobbi — NGDF Online Facilitator

          Anonymous
            Post count: 93172

            My sister is a sorce of aggrivation sarcastically saying things like ” you ALLWAYS have some crisis in yiur life…you allways have some excuse!”. Well lets see …I know some people are dealt a harder lot in life than others…I dont know why.Last August after caring for my mother w/alzhiemers for five years…she died in my arms.In 96 my beautiful 22 year old daughter died suddenly in a car wreck, that still hurts.Those are the really big crisis in my life…so what is she talking about? A chronic disease doesnt have to be a crisis…but it can be disabling, and a pain. I have a hard time in public When I forget my sunglasses I get people opening THEIR eyes big at me; like they think im surprised to see them? Well thats enough for now thanks for reading this…gerri

            Anonymous
              Post count: 93172

              You are so right Geri, it is The time for YOU. It is not the time for your sister. Is this always something she has done to you, make a big issue about something. If it is when you are better, she may still find something about you to make a statement.There are always people in our worlds that find something to pick about.

              That said, keep concentrating on you. When you need down time, take it, no matter what others have to say about it.

              Diane B On-Line Facilitator

              Anonymous
                Post count: 93172

                Gerri,
                Take heart dear it does get better. My Doc explained that the crying is normal.. Since our eyelids can’t close all the way we over procude tears to at as a lubricant.. I hated going anywhere because I always looked like an emotional wreck.. I did laugh and say that I could watch sappy movies now since no one ever accuses me of crying at things anymore.

                A side question though.. does anyone elses teeth hurt after decomp? My upper teeth throb and feel… wrong somehow. I never had this problem before the surgery.

                Anonymous
                  Post count: 93172

                  I know after reading the post that what I am going thru is normal(?). I went hyper in Dec and by Feb, the dr was lowering my medicine because my levels were down. I go back in week to have my blood work again (go about ever 6 weeks). The problem I am noticing is that I seem to get very irritated at my hubby this pass week. He has been diagnose with an aniexty disorder, but is doing great now his meds. It seems that he can’t do anything right, as far as I can see. I have notice that there things that he does that set me off.

                  My main question is. should I call the endo or wait until I get my bloodwork done. I figure that it is me and not hubby.

                  Thanks for letting me vent. It helps to have someone out there that understand.

                  Julie

                  Anonymous
                    Post count: 93172

                    If you check your levels too soon, the doctor may not be able to get the correct interpretation of your dose needs. Six weeks is usually the minimum amount of time needed. You could call and talk with your doctor about the situation, but if he/she prefers to wait for one more week, you need to know that it is usually (ultimately) in YOUR best interest to wait. But do check with the doctor if you are concerned.

                    I hope y ou are feeling much better and soon.

                    Bobbi — NGDF Online Facilitator

                    Anonymous
                      Post count: 93172

                      I know exactly what you are going thru. I experience the same thing for many months when we were working on getting the Graves under control.

                      It was very hard for my husband to understand what I was going thru and I was angry that he wasn’t there for me as I thought he should be. I think it is a big step that you understand that you are part of the problem because I thought I was right in my thinking most of the time. If you can bring yourself to say “SORRY” to your husband after an out of control moment happens; it will make a big difference.

                      Things have been under control for about a year now and I have been feeling great for the past six month. My husband and I are really working hard on getting our relationship back on track. There was a lot of damage to our marriage because of how the Graves affected me. It is a time I really don’t like to look back on but try to learn from the experience. But we did get thru it with our marriage still in tact and if we can make it thru that experience; I think we could make it thru just about anything. Thank God we are Christians and believe in that sanctity of marriage!!

                      I will be praying for you as I do for everyone on the board and hope you feel better soon. Try to always search for the light at the end of the tunnel because there will be better times ahead.

                      Take care of yourself and give your body time to heal.

                      Becky

                      Anonymous
                        Post count: 93172

                        Thank! I am lucky that my husband tries to understand, even with his problem. We found each other late in life, so we know that you have to work to make things right. We never have had a problem saying “I am sorry”. Somethings saying it is the hard part. One of the biggest things that we do is count to 20 before we open mouth and say anything. That way nothing hurtfull comes out. And I will tell you that is very, vry hard to do with Graves. I have found I am starting to say something and catch myself in time.

                        This board has been a lifesaver. I am not sure what would have happen if I hadn’t found it. It has helped me to understand. It has been a wonderful place for advice on where to get information to read.

                        Thanks for letting me vent.

                        Julie

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