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  • Anonymous
    Post count: 93172

    Jake: My daughter had orbital decompression 2 1/2 yrs. ago. I’m glad you mentioned it should only be done for vision problems. She does have some double vision but only peripheral. She has learned to compensate for this, especially when driving. One of your previous messages mentioned how it reduced the bulging by 3/4″ and I was concerned some members would want to do this surgery for cosmetic reasons. Not a good idea and any good doctor wouldn’t perform this surgery for that reason. My daughter had sinis problems this summer during a cold. It caused her eyes to swell again and limit her closeup vision. All is fine now. She has also had lower lid surgery. What are doctors doing for upper lid and below the eyebrow puffiness?? She has developed what is either fatty or muscle tissue below the eyebrow. When the doctor perform the lower lid surgery he thought the excess tissue would be fat, but found it was muscle. Made the surgery more difficult. Also, I would like to know how pregnancy effects Graves. Thanks.

    Anonymous
    Post count: 93172

    Dear Linda,

    Why the concern for the surgery re: cosmetic reasons? The stares I get, the accusations of drug use, people thinking something is wrong with me-isn’t that a good enough reason?

    Your comments please,
    Denise

    Anonymous
    Post count: 93172

    Denise: I think having any cosmetic surgery to correct the serious eye complications is a good idea. My concern is with orbital decompression. My daughter’s doctors would not consider it until her optic nerve was affected. Maybe they are wrong and having this type of surgery for cosmetic reasons is accepted. It didn’t “fix” all of her problems – only vision. I really don’t know — only what her doctors told her. She has had cosmetic surgery since the orbital decompression and is hoping for some more. I understand what you are going through even though I do not have graves. I wish I did instead of my 30 year old. She is a retail store manager who suffers through having teenagers come in and laugh, tell others to go see her, having friends think her husband did this to her, mothers who won’t let their small children near here, etc., etc., It’s painful for me to see her cry at the cruelty of others. I’m sorry if I upset you with my comments.

    Anonymous
    Post count: 93172

    I personnally chose not to go ahead with the eye surgery mostly
    because of dreaded fear of the surgery, so I am going through
    life with people stating how surprised I look all the time !!!! I’m quite
    embarrassed with my drivers license, but it’s a choise I made. and
    will live with until I’m told that I’m going blind or something…
    my best to all,
    Katie

    Anonymous
    Post count: 93172

    If one who has been treated for Graves Becomes pregnant, the doctors
    should monitor the TSH levels every trimester. If a pt. is on Synthroid
    she will probably have to have the dosage increased sometime during
    the pregnancy since being pregnant increases ones’ metabolic demands.
    Hypoactive women who are not treated risk a higher chance of miscarriage.
    Hyperactive women who are not treated run a risk of premature births
    and post-partum hemorrage, and of course all the other unpleasant
    symptoms of hyperthyroidism.

    Anonymous
    Post count: 93172

    Dear Linda,

    I am very sorry to hear about all the suffering your daughter is going through. I only wish her and you the best. I know it is painful for my mother to see all I am going through as well.

    The graves makes me a little irrational and I am sorry if I came across as harsh. I know you were only trying to be helpful.

    My best to you and your daughter,
    Denise

    Anonymous
    Post count: 93172

    Denise and Michele, will be thinking of you both next week with your eye surgery. Hope all goes well for you and your eyes are improved. I never was afraid of the eye surgery as I always felt at least something positive was being done that would help make me better. Be sure and let us know when you can how you are doing.

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