I can see why you are frustrated. A whole bunch of “I don’t know”s from the doc would give me the heebie jeebies, too. I don’t mind a FEW “I don’t knows”, in fact I prefer hearing that to some patronizing statement that I don’t NEED to know, but a constant stream of them…….
As far as the muscle spasms go, I THINK the issue is that the doctors do not understand precisely WHAT is going on in the muscles — only that it happens. I haven’t found any research into it — and I’ve LOOKED. And it can happen when you are hyper or hypo, although, most typically I think people experience them when their hormone levels drop toward or into hypo. My endo told me that the cramping was a reaction to variations in thyroid hormone levels, but the specifics of what is going on in the muscles is not known to her. FYI, the spasms seems to be of two different types too — the charlie horse type that can be stretched out, and the infernal twitching type-that-drives-you-nuts. The only thing I do know for sure, is that when I am at normal levels of thyroid hormone, it doesn’t happen. If the levels are fluctuating around much, it does.
Wishing you a good weekend,
Bobbi
