My first RAI was in December of 1994. I was on PTU prior to that, and we just decided to try RAI. I was
very worried about it since at that time I was only 16. We thought the first RAI would work, but my body was just too far advanced.
We tried PTU again until June of 1995, then we decided that we would try RAI again, and if it didn’t work that
second time, we were going to just remove it, but it worked. I went anywhere from 6 PTU pills a day to 40+ PTU pills a day.
Since I was so young, he really didn’t know what to do, so we experimented. We kept close contact with a specialist at the Mayo
just to make sure we were right on track. They also figured that I had gone undiagnosed for a very long time. it was a very scary experience for me.
I have now entered college, and I still get lab done regularly, because my levels change sometimes due to stress. For instance, my
dad just had open heart surgery, so they checked me then to make sure I hadn’t changed. I guess I’ll just be going to lab for the rest of my life. It
all goes along with this beautiful disease we were picked to carry. Let me know if you have more questions. I just found this BB
yesterday, so I am enjoying it! Hope to hear from you soon. Jodi
Anonymous
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