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  • Anonymous
      Post count: 93172

      Keeping my fingers crossed for you. Yes – you are supposed to beable to have radiation treatments only once. However, my eyes weresuch a mess that they decided to do it a second time. Ten treatmentseach time. In between the treatments I had my first decompressionsurgery. The second eye was done after the second round of radiationtreatments. Depression was a real problem during this time, but Ithink at least some of it was due to the massive doses of steroids(80 mg) I was taking along with the PTUs. Anyway it’s over, I had RAI a littleover a week ago and feel okay so far. Even my eye doctor said I hadseen hell and come back. You’ll be okay too.

      Anonymous
        Post count: 93172

        Hi Joanne, Thanks for the good luck. I am leaving in about half an hour. Just thought I would check the board while I am waiting for my husband to pick me up. I am a little mixed up as you said you had radiation twice. I was told when I had my consultation that you can only have it once on your eyes. The treatment period is ten consecutive treatments but after that is over I cannot have radiation on my eyes again. I’ll try to remember to ask today. My memory is not that good these days. Talk to you later. SAS

        Anonymous
          Post count: 93172

          In rare cases they do a second course of radiation, they considered doing it on me but would have wanted me to go to somewhere like Stanford for the second treatment.

          Bruce

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