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  • Anonymous
    Post count: 93172

    Erica and Colleen and any others:

    My understanding is that simple iodine is given for a couple of days
    before the RAI to prevent thyroid storm. Did anyone who experienced
    thyroid storm have the simple iodine?

    John

    Anonymous
    Post count: 93172

    Colleen- its nice to find someone who can understand what I am going thru.
    Thankfully the palpatations have stopped. My heart still beats about 80
    to 90 beats per minute when i’m resting. They tried me on different
    beta blockers, but like everything else I have tried, I had reactions to
    Inderal ans Atenenol as well. During the thyroid storm my heart was
    beating at 145 10 155 beats a minute and my temperature increased to over
    102 degrees. I also became so dehydrated that the veins in my arms began
    collapsing and they could not start a saline solution IV. It was the worst
    experience of my life. I am praying that I will not have to have another
    radioactive iodine treatment. I would rather die. I am only 22 and I hope
    I have not ruined my chance to have children?
    I do not know what to expect next? I wish you the best of luck….erica

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