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  • Anonymous
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    Post count: 93172

    Em – your comments really interested me. Just this morning my daughter,
    the one with with GD – 3 years post RAI, said how wierd it is that her
    energy level changes so drastically and without warning. This after she
    got up early, ran several miles, mowed the lawn, weeded the garden then
    headed off to work on a VERY hot and humid day! She was flying. Of
    course she also crashes suddenly as well. This is also complicated by
    hypoglycemia. Yikes!

    Amen to inspiration. To live and love well is the true joy in life.

    Anonymous
    Participant
    Post count: 93172

    I am not a nurse, only a home health aid, but I had a patient that had Guillian-Barre, an auto-immune disease that left him paralized and on a ventilator. He had the anti-bodies that were attacking his nerves removed from his system with a procedure called plasma-phoresis. Basically they removed his blood and filtered it and then returned it to his body. This procedure had to be performed 80 to 90 times but he did get the use of his body back. He still needs to take immuno-supressants from time to time and did have some life threatening reactions to the procedure. This was about 5 years ago and was concidered experimental at the time. Perhaps it is just a first step to understanding and finding a cure…Joyce

    Anonymous
    Participant
    Post count: 93172

    You know, I was just thinking of something that always helped me through, no matter what the trials or tribulations. I do not mean to offend anyone if this is not of your belief, but, this means a lot to me:

    PSALM 23

    The Lord is my shepherd; I shall not want.
    He maketh me to lie down in green pastures;
    He leadeth me beside the still waters;
    He restoreth my soul;
    He leadeth me in the paths of righteousness for His name’s sake.
    Yea, though I walk through the valley of the shadow of death,
    I will fear no evil: for Thou art with me;
    Thy rod and Thy staff they comfort me.
    Thou preparest a table before me in the presence of mine enemies:
    Thou anointest my head with oil; my cup runneth over.
    Surely goodness and mercy shall follow me all the days of my life.
    And I shall dwell in the house of the Lord forever.

    Just wanted to share my thoughts.

    Mitakuye Oyasin
    Val

    Anonymous
    Participant
    Post count: 93172

    To your beautiful post of Psalm 23, I will add the end of Psalm 27
    which has helped me through the roughest times:

    “I would have lost heart, unless I had believed
    That I would see the goodness of the Lord
    in the LAND OF THE LIVING.
    Wait on the Lord,
    Be of good courage,
    And He shall strengthen your heart.
    Wait, I say, on the Lord.”

    When I was really whacked out, I had a friend “one of Job’s counselors” who
    in some strange way of trying to cheer me told me that I may not find
    peace from this disease until I died (some comforter, right?), anyhow,
    I clung to that verse: that I WOULD see the goodness of the Lord in the
    land of the living. And I have and believe I will continue to, as will all
    of you.

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