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  • Anonymous
    Post count: 93172

    Hi Debby
    Thanks for the info, Im from a small province in Canada, so I’ll have
    to see if it available here.
    You also mentioned you had decompression surgery, is that complicated?
    I inquired about it but it isn’t done where I live, I’ve had surgery
    5 times for eyelid retraction, the right eye is still a little off.
    I have yet to meet someone personally with this eye disease, and it’s
    been 5 years for me now. Sometimes I feel like the only person with
    this disease, thank God for this BB, at least I know I’m not the only
    person, It gives me some comfort to know that I’m not alone, and people
    do care.
    Thanks, Shana.

    Post count: 93172

    This is the first time I have seen this BB. I was diagnosed in August, 1996 with Graves. Tomorrow I will be having RAI treatment. It was a welcome relief to see everyone doesn’t have a horror story about this treatment. I know I will just be glad to be off the see-saw with my thyroid levels. And this seems the most sensible route. If anyone has any “advice” about the RAI or what I can expect, let me hear from you. My e-mail is: kathryn

    Post count: 93172

    Hi Shana! Glad I could help – a little. Yes, decompression is pretty complicated. More than I want to get into tonight – feeling a little off, kinda fuzzy. I’ll fill you in another time. Thanks for understanding.


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