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  • Anonymous
    Post count: 93172

    WELL THANKS FOR THE INFORMATION, HOW LONG HAS IT BEEN
    FOR YOU WITH GRAVES AND ARE YOU GETTING BETTER.

    2 YEARS NOW NO CHANGE YET I HOPE THE RAI WORKS SOON
    ID LIKE MY OLD LIFE BACK, AND WOULD LIKE TO GET BACK TO WORK
    THANKS FOR LISTENING AND THE BETA BLOCKER STUFF STAY IN TOUCH

    STEVE , FROM CANADA

    Anonymous
    Post count: 93172

    In answer to the question of how long I’ve had this wretched disease — I’m new to it. I don’t know how long it has been going on, since, in retrospect, I can pick out mild symptoms for a while. But this summer (July) I began to feel really horrible with heart palpitations, muscle weakness and tremors, and quite a few other items on “the list”. My doctor kept treating me for anxiety, but my Mom has Graves, so I NAGGED for tests. It took a while. My doctor may have misread the blood work, because I was sent to a cardiologist, a neurologist…… I kept nagging. It was finally diagnosed in September and I went on PTU. But I did not react well to it. It did, apparently, bring my thyroid hormone levels down, but I still needed the inderal for the symptoms, plus I developed a cough and red blotches on my hands. So I had RAI last week.

    I have found the support board to be very helpful, and I really appreciate finding it. Even though I am new to this, I am a bit of an info junkey, so I have been reading everything I can get my hands on from every possible legitimate source, and asking LOTS of questions of the doctors. Including friends who are doctors. The file of print-outs from the web alone is about five inches thick already. One bit of advice that I received, that helps me a lot, was to seek out humor. A friend read Norman Cousins book long ago and told me about it, after I was diagnosed. Apparently he was extremely ill, and decided, in addition to traditional medical treatment, to fill his life with laughter. He later wrote a book about it. Anyway, when I have found myself feeling depressed, preoccupied with the symptoms, I have taken this advice to heart and sought out funny movies, and friends are constantly sharing jokes in email with me. It absolutely helps. At least to get perspective back. A good dose of the chuckles seems to go a long way.

    Wishing you all a Happy Thanksgiving.

    Bobbi

    Anonymous
    Post count: 93172

    Thanks for the answers I really get down alot now days. I wish this weight would come off. I have to learn to be more patient.
    Thanks again,Pat

    Anonymous
    Post count: 93172

    You are such a fount of knowledge, I really respect your opinion. It makes sense, that it’s a bug. I also am not sleeping well and I’m one of those people who “has” to have 8 to 10 hours a night. I had mono years ago for 6 months and ever since I have had to sleep regularly. Cool, I feel better. PeggyR

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