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  • Anonymous
      Post count: 93172

      I am suffering from Grave’s Eye Disease now. I had RAI done in November of 1999. I first started with the double vision when I was tired. Then it started to take over all my peripheral vision in both eyes all the time. Now my left is useless and at the moment I have to wear a patch. The double vision has taken over completely. I still have some vision in my right eye, but I have to look straight ahead to see anything. I am being treated right now for this and finally my eye doc has referred me to the University of Virginia Hospital to see a specialist. My opthomologist had treated this before, but he said he had never seen such a severe case first hand. I have been so frustrated, I thought that maybe if I just went blind they would do something. But, I do know that my doctor’s (all of them) have really been trying hard to get my life back to normal. All they asked was that I be patient with them, that there is no quick fix. And they we would probably have to try several different things before anything worked. I think people take their eyesight for granted until you can’t see you don’t appreciate it. There must be some way that you can be seen. I don’t have vision insurance, but I do have medical and it is covered because this is not just vision it is medical. I wish you the very best.

      Angie

      Anonymous
        Post count: 93172

        Please e-mail me with good eye dr.’s in Orlando. Thanks

        Anonymous
          Post count: 93172

          Hi Jake!

          I’m posting this specifically to you since you’ve had so much experience in the eye dept. I had RAI in May, and went hypo in Sept. I’m currently in the process of trying to find my correct dosage of replacement, which seems to be taking longer than it should! Anyhow, I had mild eye involvement, and have some days that are worse than others as far as pain, watering, etc.My question is this… with Graves’ Disease, does there ever come a time when you are completely out of the woods as far as developing the eye disease? In other words…once I get stabilized, will I always have a chance of developing the eye disease, or are my chances minimized, or is there no chance at all that I’ll get it? Hope you can answer this for me…I’m in between endo visits, so thought that I’d just refer this one to the second best “expert” on the subject! :-)

          Thanks, Jake!
          Kathleen

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