[Anonymous]

#1056256

Dear and hopeful ones…

Gale, thanks for your encouraging words re: Tapazole. I myself am so grateful
for it. I feel prety good, considering I have GD. I have heard of folks taking it everyother
day as they taper off. You only need how much you need.

Lisa, I trust that you have already heard from other “Tap”
takers? Hang in there..it took a few weeks for me to start to feel
a change and then I continued to get better. My eye problems
are fewer and less constant now as well. My family was shocked at how much I hiked,
compared to not being able to climb the stairs at home a few months ago
and not wanting to anyway.

Caren, Anxiety is common territory with any illness but GD has a
special whammy. There are lots of good posts about
calming exercises, etc. We cannot underestimate the importance
of personalized primo self care. This might mean lots of different things,
when anxiety is triggered, as it is by the phisiological changes of GD,
even as those precipitating factors calm down and normalize, it is
as if the anxiety “button” has been stimulated and now needs to be deactivated.
If we weren’t a little anxious about what is or might be happening to us, I’d
say we were a little nuts… so don’t let labels or people’s ignorance
or insensitivity get to you. As for weight gain on Tapazole…adjust
you intake down, your metabolism will slow down..ie you won’t be hyper any more.
You will be able to do more on less.

JOINT PAIN is in fact a common mention on the survey, or limb
pain swelling etc.

IF YOU WANT TO HELP ORGANIZE INFO contact NANCY directly,
I will be doing the survey, but won’t be able to help much
on the other project at this time.

SAS wishing you well…sounds rough now, may it change better soon.

JENNIFER glad you are here with all your painfully earned expertise!
CAROL ANN your posts to others are invaluable.

LUCI I vote with you on supporting LYNN T. HEY LYNN up up and away in my
beautiful balloon. Please don’t stop posting feeling up or down!! You know..sometimes the best thing we can do for each other is not agree,
not see things from the same point of view.
Don’t we all say the dumbest things in the face of other’s needs sometimes?
We have to cut each other that kind of slack too.
Okay I’ll quit…and try to catch up, i have read up to april 3…
You guys is all very busy. Jeannette

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