[Anonymous April 29, 2004 at 11:48 am Post count: 93172]

#1023559

Carol

I’m glad I could help. I’m very sorry to hear about your aunt. I can also tell that my symptoms seem to get worse when I am going through extra stress at work or in my personal life.

My understanding is that it takes some trial and error to figure out exactly what dose is right for you. If you get too much atd, then you get hypo, then if you reduce it too much you get hyper again. Although I don’t have any experience with synthetic T3/T4, I believe the same thing is true, just in reverse. So no matter which treatment option you choose, there will be some tinkering with dosage to find what works best for you. So hopefully you’ll start feeling better as you get closer to finding your perfect dose.

[Anonymous May 27, 2004 at 8:26 am Post count: 93172]

#1086112

I need some help. My daughter was diagnosed last Sept and did not find an endocrinologist that treated her correctly until Jan. Had radiation 4-5 weeks ago and is not doing well. Placed back on Tapazole and on Antenolol 4 times day. Can not sleep. Heart still racing. Unable to work. We are very discouraged. Please let us know if there is hope on the horizion. She is getting married is 5 weeks and can hardly get anything done.
Thanks,
sansonegl

[Anonymous May 27, 2004 at 10:34 am Post count: 93172]

#1086113

There is always hope, don’t forget that! But recovering from Graves’ can be a long process…it fact, count on it being a long process. If your daughter has not seen her doctor recently, she really ought to, to at least have a blood test if nothing else. Even after RAI I had some rough times, we all do, it’s just part of the process. Unfortunately nothing is easy at this stage, but I promise it does get better! So be hopeful. Your daughter is lucky to have someone like you fighting for her, I think it’s wonderful. Help her get as much rest as possible, it what she needs now (spoken by someone who’s been there). I’m 1+ years post RAI and doing so much better now and so much happier now so there is a light at the end of the tunnel, this need not be a life sentence. I wish you and your daughter the best of luck! Hang in there and let us know about her progress.
~Joni

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