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  • Anonymous
      Post count: 93172

      That is just so hilarious, and what a creative solution to an aggravating

      I had RAI treatment years ago for Grave’s Disease and went for years
      without any thyroid replacement therapy. Don’t wait too long to get your
      thyroid checked on a yearly basis. I can’t remember if I failed to get mine
      checked frequently after it was determined I had stabilized and didn’t need
      replacement hormone, but when I finally noticed the symptoms of hypothyroidism
      as a result of RAI, I was really in a bad way. I still don’t know if I’m getting
      the correct hormone replacement dosage as I have lots of aches and
      pains and other symptoms which have led my doctor to dx’ing me with
      fibromyalgia ( a common disorder dx’d among those of us who had
      previous episodes of thyroid crisis).

      I don’t want to discourage anyone since it still is not definite that Grave’s
      Disease or any other thyroid condition leads to fibromyalgia, but just
      want you all to remember to take care of yourselves and keep a close
      watch on your thyroid hormone levels through your endochrinologist.


        Post count: 93172

        Hi April II

        Welcome to the Graves Board! I was interested in reading about your long remission since RAI years ago. What was the secret? Stress management? better diet? or what? This year, I had PTU for three months and RAI and will find out in August to see what my thryoid panel is like. I would appreciate knowing how you have managed to avoid being banished into the hypoland for so long… I hope you don’t mind sharing it with us. We need to hear information on the other end of the continuum of treatment results… Many thanks!

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