Hi Caren, Check if you have a clinic where you live. We have one connected with the University and all the Doctors work together. It’s very good. My Ophthalmologist, Endo and the Radiation Oncologist work together. I have been in appointments when they are all there to discuss my case together. This way they are all aware of exactly what is going on. I have copies of all their reports because I had to send them to my insurance company for my disability insurance. They all send reports to my GP so he is also aware of exactly what is going on. I have every confidence in the Doctors that are seeing me and the treatments I am receiving. I hope you can find the same. Even tho this is a terrible disease to go through knowing you are in good hands does help.
Keep smiling and take care. SAS