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  • Anonymous
      Post count: 93172

      John,

      Prior to my second dose of RAI, I was taking .050.
      They did a radioactive iodine uptake. My TSH was 0.17.
      They did alot of other blood work and then they recommended
      the second treatment.

      Dave

      Anonymous
        Post count: 93172

        Dave

        Thanks much for your response.
        How low did you go on dosage before you had the RAI?

        John

        Anonymous
          Post count: 93172

          I had RAI one and a half years ago. I started at a dosage of .175mg
          and have slowly gone down in dosage to .025mg. Anyone out there who
          has had such a variation over so long a time period?

          John

          Anonymous
            Post count: 93172

            Hi John! It’s been over six years since I had the RAI treatment, and since then my hormone replacement dosage has changed several times. I’ve been as high as .175 mg to as low as .1mg. It seems each time I have my TSH checked lately my doctor adjusts the dosage.

            It’s my understanding that it takes many years for the thyroid to completely adjust to the treatment. It was about four years after RAI that my endo said that my thyroid gland was gone and that my dosage would have to be closely watched to regulate it accurately.

            So, maybe your thyroid is still in the adjustment stages. Correct me if I’m wrong, anyone!

            Debby

            Anonymous
              Post count: 93172

              John- I had RAI twice. I started out on a very low dosage, and now I am
              up to .125. This is where I have been since about June. It takes a while
              and a lot of adjustment to get used to all those varying dosage, but I can
              relate to you on the varying dosage. it certainly is not fun!
              Take Care–Jodi

              Anonymous
                Post count: 93172

                Jodi
                Thanks for your response. Could you tell me your experiences leading
                up to your second RAI. How rapidly did you vary dosage until the second
                RAI? How low down in dosage did you go before the second RAI? How much
                time between the first and second RAI? On what basis did your doc suggest
                a second RAI?

                John

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