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  • Anonymous
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    Post count: 93172

    A question Denise:

    Did your doctors indicate the plasmapharesis would “suppress” the immune system? The way I understood this procedure was that it was a way of temporarily getting rid of the antibodies that are attacking your eyes. Are they also giving you immunosuppressive drugs?

    Wishing you luck,

    Bobbi

    Anonymous
    Participant
    Post count: 93172

    Bobbi,
    Thanks for your e-mail. In response to your question, yes
    the plasmaphoresis is suppose to suppress the immune sys
    ytem. Everybody is different and for this treatment right
    now it is too soon to tell. I just ent for my fourth today
    and will receive one more on Thursday. They can only leave
    the catheter in for two weeks or it can cause an infection.
    So far I have not had to worry about that. There is also
    part 2 of the treatment and that is the immunosuppressant
    drugs. I spoke with the doctors today and it looks like I
    have no choice to go ahead with this. My optic nerve is
    threatened in my left ey after two three wall orbitals and
    the graves does not want to calm down even with prednisone.
    I received a high dose of solumedrol today too 1000 mg’s
    I will go for a visual field tommorrow to see how the
    treatment is working. I will keep you posted.kk

    Have you had radiation treatments that would be my last
    choice left to save my eyesigt. I have diabetes and the
    doctor’s say I could have complications with this.
    Please write I enjjoy hearing from you. You offer a lot of
    good information

    Denise

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