[Anonymous February 20, 1997 at 4:34 pm Post count: 93172]

#1056895

Hi, fellow Graves Warriors…..

Everyone seems to be doing a really good job of answering the survey.

Please feel free to ask me questions or express concerns regarding this
project. Some of the questions I hear are: How will I maintain
confidentiality? I pair your name with a number and when the info is
shared, for example on the NGDF home page, only the number will appear,
not your name. There are already 83 participants. The info is in an
excell program, so we will be able to make different calculations on it.
For example, what state has the most cases represented? Thus far it
looks like Pennsylvania. Another example would be Average age at onset.
The treatment qustions will be most interesting.
I hope you will keep in touch if you change e-mail. But again, that info
will be held confidentially. I keep the original info you send me,
compiled as I receive it, so thaT I can check my own accuracy.

The survey questions are available at
http://www.support-group.com/links/graves/survey.htm

Some of it is as easy as a yes or no button to push, thanks to Annette
and Archie. The survey is immediately forwarded to me. Or if you prefer I can e-mail the questions to you at your request.
I was so amazed at the wealth of info that you all
have and share here on this board, I had to try to compile some of it.
I am doing this as a volunteer contribution to NGDF, for you and
future folks who face these peculiar troubles. Any questions I haven’t
addressed, please ask me on the BB or feel free to E-mail me.

I try to remember to put the address up every day,for new people
passing through who have their treatment behind them can then share
their info with us. I have taken the liberty of e-mailing many of you, based on
old posts I have read and many of you have gratified my efforts with
a response. My apologies to any who have been approached twice or would
have prefered to have not been asked. I hope the survey will prove
useful and your participation in the vulnerable act of recounting your
experience will not be in vain. Jeannette

[Anonymous February 20, 1997 at 6:19 pm Post count: 93172]

#1164693

It’s interesting that you have found most of the people from PA. I myself can’t believe how many people have thyroid problems. One doctor in the are thinks it could be related to 3 mile island. Would you have any comparason on say 50 years ago versus todays cases?

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